The Postural Orthostatic Tachycardia Syndrome Program (POTS Program) at The Children’s Hospital of Philadelphia (CHOP) was established specifically for the diagnosis and care of patients with postural orthostatic tachycardia syndrome (POTS), a severe malfunction of the autonomic nervous system and the most common form of dysautonomia.
POTS varies widely in presentation, but patients typically have difficulty standing upright, resulting in a rapid heart rate (tachycardia) when standing, with nausea, fatigue, dizziness or fainting.
Patients with POTS can also suffer from many other symptoms, including exercise intolerance, blood pooling and mottling, gastrointestinal abnormalities, chronic pain, difficulty concentrating and bladder dysfunction. Severely and even moderately affected patients can struggle with daily activities and are sometimes unable to work, attend school or participate in recreational activities.
The POTS Program at CHOP is led by clinicians from cardiology, bringing together neurology, gastroenterology, genetics and other areas, making our team one of the largest and most experienced in the nation dedicated to caring for children with this challenging and complex condition.
We are staffed by clinicians who specialize in caring for children with POTS, including a dedicated nurse practitioner, Tom Bernadzikowski, MS, MSN, CRNP, and attending cardiologist Jeffrey Boris, MD, who has been managing POTS patients since 2002 and has seen hundreds of patients with POTS since coming to CHOP in 2007. Our specialists are committed to advancing treatment options and improving outcomes for children with POTS through research and awareness.
For your family’s convenience, we see patients in several locations. Our family-centered care model includes support services to help your child and family cope with having a chronic illness.
Through the POTS Program, your child will have direct access to the many pediatric specialists that he or she might need to help manage the various medical problems associated with POTS. Related clinics and services available to your child at CHOP include, among others:
The POTS Program at CHOP maximizes access to care and treatment by our full team at several locations. For your convenience, your child can be seen at a number of our CHOP Specialty Care Centers located in Chadds Ford, Exton, King of Prussia and Chalfont, as well as in Philadelphia at The Children’s Hospital of Philadelphia’s Main Campus.
Both comprehensive new patient evaluations and follow-up appointments can be scheduled from 8:00 a.m. – 4:30 p.m., Monday through Friday.
Patient families or referring physicians can contact the POTS clinic at any time with questions or to make an appointment. Call 215-590-4040, option 1.
Every person’s story and situation is unique when it comes to living with POTS. You can learn more about the syndrome and how we treat it at CHOP on the POTS condition page.
For more general information, we’ve gathered some additional resources that may be useful to you and your family.
For more information about POTS:
POTS resources developed by CHOP team members:
For additional educational materials and support services, please talk to your child’s clinical care team. We can provide you with the appropriate resources. Also, please consult your child’s doctor directly with any specific questions about symptoms or treatments.
Reviewed by: Jeffrey Boris, MD, Tom Bernadzikowski, MS, MSN, CRNP
For a second opinion, cardiac referral, or for more information.
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