Non-profit group founded in 1995 to support families and medical care providers of children with congenital diaphragmatic hernia.
Toll-free: 877-403-1944 (please U.S. calls only and for families who cannot afford long-distance calls)
Postal address: CHERUBS, P.O. Box 1150, Creedmoor, NC 27522
Breath of Hope exists to raise awareness of congenital diaphragmatic hernia (CDH) by working with parents, family members, and medical professionals to educate and support all who are affected by or want to learn more about CDH.
Phone: (888) 264-2340
Postal address: PO Box 6627, Charlottesville, VA 22906
Gastroschisis Exomphalos Extrophies Parent Support
An international network of families and friends of children born with abdominal abnormalities.
Internet support group for families of children with omphaloceles. Includes links to other resources and addresses all facets of the condition.
Founded by a father whose child had an SCT. Includes an online support group and a link to other websites, including The Children's Hospital of Philadelphia.
A comprehensive source of information and resources about spina bifida, the most common permanently disabling birth defect in the U.S.
Includes information for families during and after pregnancy, research updates, a message board and more.
Support organization for parents who have lost one or more of their children during a multiple gestation pregnancy. Special newsletters cover topics, including “knowing ahead,” by and for parents who have learned during pregnancy that one of their twins or multiples will not live long after birth. “Going longer,” was written by and for parents who are going through the remainder of a twin or higher multiple gestation pregnancy after one of the babies has died in utero.
Established in 1994, Twin Hope is a voluntary private non-profit organization dedicated to serving families, educating the public and professionals and broadening awareness of Twin-Twin Transfusion Syndrome and other twin-related illnesses.
Phone: 502-243-2110 (Twin Hope 24-hour hotline)
Postal address: Twin Hope, Inc., 2592 West 14th St., Cleveland, OH 44113