Wood Center for Fetal Diagnosis and Treatment Patient Stories
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Hugh’s Story
Hugh was diagnosed with congenital diaphragmatic hernia (CDH) in utero. His parents traveled to the Center for Fetal Diagnosis and Treatment at Children’s Hospital of Philadelphia (CHOP), which has treated more CDH cases than any hospital in the world. Hugh is now a healthy 10-year-old who proudly claims Philly as his hometown, and the Eagles as his favorite team.
Transposition of the Great Arteries: Mazan’s Story
When their son is born with a complex congenital heart defect, a Lehigh Valley family turns to CHOP for care.
Siena’s Story: Fetal Surgery for Myelomeningocele
A life-altering experience — and life-changing care — at Children’s Hospital of Philadelphia’s Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment inspired Siena’s family to ease the burden for others.
Given’s Story: Prenatal Care and Postnatal Surgery for Sacrococcygeal Teratoma
When Given’s parents learned their unborn baby had a sacrococcygeal teratoma (SCT), a tumor on the tailbone, they sought help and hope at CHOP.
Christian’s Story: 22 Years After Fetal Surgery for Spina Bifida
In 2000, Christian had fetal surgery for spina bifida at CHOP. Today, he’s an EMT. Follow his journey.
Lyra’s Story: Celebrating the 5,000th Baby Born in the Garbose Family Special Delivery Unit
After learning their unborn daughter’s life was at risk from a tumor growing on her tailbone, Lyra’s parents found hope in the SCT experts at CHOP.
Treatment for Congenital Hypothyroidism Before Birth: Jane’s Story
When a 20-week-old fetus was diagnosed with a large goiter, CHOP experts offered a novel solution – regular infusions of thyroid hormone into the umbilical cord.
AJ’s Story: Fetal Surgery for Congenital Diaphragmatic Hernia
Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.
Asher’s Story: Fetoscopic Endoluminal Tracheal Occlusion for Congenital Diaphragmatic Hernia
Asher came to CHOP for a fetal surgery procedure called FETO to treat his severe CDH before he was born, giving him the best chance to survive and thrive.
Twin-twin Transfusion Syndrome: Josephine and Athena’s Story
When their twins were diagnosed prenatally with twin-to-twin transfusion syndrome, a New Jersey couple found hope at Children’s Hospital of Philadelphia.