The Combined Kidney/Liver Program

The Children’s Hospital of Philadelphia, as a recognized leader in the fields of pediatric hepatology and nephrology, is proud to launch the Combined Kidney/Liver Program. We are here to serve patients with a variety of genetic disorders that affect both liver and kidney development. The program is one of the only dedicated combined liver and kidney programs for patients with autosomal recessive polycystic kidney disease (ARPKD) and other rare disorders of ciliopathy.

The most well known rare genetic disorder that affect both the liver and the kidney is ARPKD with associated congenital hepatic fibrosis. Others include Joubert syndrome, nephronophthisis and Bardet-Biedl syndrome.

Children’s Hospital shares the No. 1 spot on U.S. News & World Report’s prestigious 2014-15 Honor Roll of the nation's Best Children's Hospitals. Our Division of Gastroenterology, Hepatology and Nutrition is ranked fourth nationally, and our Division of Nephrology is ranked third. CHOP physicians and scientists actively participate in the clinical care and research of these rare diseases. Our goal is to provide the finest diagnosis, treatment and follow-up care to children and families who are affected by these rare genetic disorders.

What we offer

Specialized Care: In addition to a core team of nephrologists and hepatologists, our program includes supportive services such as nutrition, social work, psychology, transplant, transition to adult care programs and more.

A comprehensive treatment plan: By establishing a combined liver/kidney program, we offer expertise in complete clinical care of a rare disease as well as convenience of seeing multiple specialists in a single clinic session.

Access to clinical expertise: Evaluation by our expert specialty care team can make a significant impact in the lives of children and families affected by these conditions. CHOP also has great expertise in kidney and liver transplantation as well as access to other subspecialists who are leaders in their fields.

What diseases do we see in the combined liver/kidney program?

We see patients with ARPKD, nephronophthisis, Joubert syndrome, Bardet-Biedl syndrome, oro-facial-digital syndrome or any other disorder that causes chronic kidney disease and liver disease. For new referrals, current patients at CHOP and patients interested in second opinions, we now have the combined liver/kidney clinic located on the first floor of the Main Building on CHOP’s University City campus.

When should your child come to see us?

For questions or to make an appointment, please contact the combined kidney/liver program through the Division of Nephrology at 215-590-2449. Clinics are held quarterly on a Wednesday in January, April, July and October.

Date: June 2013

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