Pediatric Neuro-Oncology Program Resources

Use this kid-friendly tour of our Proton Therapy Center to prepare your child for their first day of treatment.

http://www.amazon.com/Childhood-Brain-Spinal-Cord-Tumors/dp/1941089003/

This guide includes descriptions of the newest brain and spinal cord tumor treatments, as well as practical advice about how to cope with the diagnosis.

https://www.amazon.com/Childhood-Cancer-Parents-Cancers-Patient-Centered/dp/1941089151

This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.

If you are an adolescent or young adult (AYA) with cancer, you probably have many questions. We understand that not everyone wants to ask their questions out loud, so we’ve compiled a list of those that are often asked.

The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.

While preserving fertility is an important topic for families to discuss before cancer treatment begins, it can also lead to some uncomfortable conversations.

This video series is designed to help referring oncologists and families better understand the different treatment options for patients with difficult or hard to treat cancers.

Social workers discuss the complexities of caregiving, how to have caring, honest conversation with members of the family around the topic of caregiving, and offer tips on how to manage the unique role of the caregiver.

Psychologist Meghan Marsac discusses coping strategies for families facing childhood cancer.

Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Buerger Center for Advanced Pediatric Care on the Raymond G. Perelman Campus. 

Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the King of Prussia Specialty Care & Surgery Center.

Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Specialty Care & Surgery Center in Voorhees, NJ.

Pediatric brain tumor experts from the Children's Brain Tumor Tissue Consortium (CBTTC) at CHOP discussed the latest research in pediatric neuro-oncology in a webinar held May 15, 2015.

Dr. Lamia Barakat discusses the ways childhood cancer affects the child, parents and siblings, focusing on the experience of post-traumatic stress symptoms and post-traumatic growth.

CHOP's pediatric surgical oncology team consists of experts with extensive experience in various types of cancers, including neuroblastoma, brain and bone tumors, as well as other rare and hard-to-treat cancers.

Psychologist Lynne Kaplan, PhD, and child life specialist Sarah Pajak discuss the experience of siblings of a childhood cancer patient.

In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.

Proton therapy is an alternative to traditional radiation treatment for childhood brain tumors. Learn how it works.

http://www.cancerhopenetwork.org/

Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.

https://www.ctf.org/

The Children's Tumor Foundation is dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis.

https://cbtf.org/

Its mission is to improve the treatment, quality of life and the long-term outlook of children with brain tumors through research, support, education, and advocacy to families and survivors.

http://www.braintumor.org/

The National Brain Tumor Society is committed to moving research toward new treatments, fighting for policies that improve lives, and providing information and resources.

http://www.cancer.gov/cancertopics/types/childhoodcancers

NCI's website includes links to information about treatment, clinical trials, testing and research.

http://www.rarediseases.org/

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

http://www.nfnetwork.org

Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and the development of local NF organizations.

https://nf2is.org/groups.php

The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.

http://www.oncolink.org/index.cfm

OncoLink is a website maintained by the Abramson Cancer Center at the Hospital of the University of Pennsylvania. It features a wide variety of information on adult and pediatric cancers.

http://www.pnoc.us/

PNOC is a network of eight children’s hospitals that conduct clinical trials of new therapies for children with brain tumors.

http://www.curethekids.org/about-us/#.Uxit2c7DUsA

The Pediatric Brain Tumor Foundation provides free educational information about brain tumors, college scholarships and Ride for Kids motorcycle charity events.