Congenital Diaphragmatic Hernia (CDH) Patient Stories
1 - 10 of 23
AJ’s Story: Fetal Surgery for Congenital Diaphragmatic Hernia
Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.
Asher’s Story: Fetoscopic Endoluminal Tracheal Occlusion for Congenital Diaphragmatic Hernia
Asher came to CHOP for a fetal surgery procedure called FETO to treat his severe CDH before he was born, giving him the best chance to survive and thrive.
Congenital Diaphragmatic Hernia Treatment Before Birth: Hendrix’s Story
When their unborn baby was diagnosed with congenital diaphragmatic hernia (CDH), Alyssa and Louis turned to CHOP for treatment before and after birth.
Maxwell’s Story: Postnatal Repair and Care for Congenital Diaphragmatic Hernia
Chris and Jolin traveled from their home in Pensacola, Florida to Children’s Hospital of Philadelphia to give their son, Max, access to world-class CDH care.
Fetoscopic Endoluminal Tracheal Occlusion Offers Hope for Prenatally Diagnosed Cases of Severe Congenital Diaphragmatic Hernia
CDH can be a devastating diagnosis for an expecting parent to receive. But for a select group of babies with the most severe form of CDH, treatment before birth may help.
Overcoming Feeding Issues from Congenital Diaphragmatic Hernia: Maggie’s Story
Born with a hole in her diaphragm (congenital diaphragmatic hernia), feeding difficulties were one of the biggest hurdles little Maggie has had to face in her CDH journey.
Lily’s Story: Congenital Diaphragmatic Hernia Repair
After receiving a prenatal diagnosis of CDH, Laura and Nick turned to the expertise of CHOP’s fetal team.
Oliver’s Story: Prenatal and Postnatal Care of CDH and Giant Omphalocele
After an unexpected prenatal diagnosis, Olly’s parents found comfort with the experienced team at CHOP’s Center for Fetal Diagnosis and Treatment.
Jaxon’s Story: Prenatal Diagnosis, Pregnancy Management and Postnatal Care of Congenital Diaphragmatic Hernia
When Jaxon’s family learned he had congenital diaphragmatic hernia, they traveled from West Virginia to seek care from the CDH experts in Philadelphia.
Congenital Diaphragmatic Hernia: Gage’s Story
Born with CDH, Gage made a full recovery after surgery at CHOP. To help others, his family is participating in research about long-term outcomes for CDH.