Lamia Barakat Research Program
DECIDES aims to increase AYA involvement in clinical trials decision-making and improve decision processes for AYA and primary caregivers.
Researchers at the Center for Childhood Cancer Research are evaluating the long-term effects of proton therapy on neurocognitive outcomes in infants and young children with a variety of pediatric brain cancers.
Neurocognitive assessment protocols assess long-term effects of cranial proton therapy in pediatric patients.
Researchers are collecting data on AYA adherence to cancer treatments to help identify ways that families and doctors can help AYA follow medical recommendations, such as taking pills, attending clinic appointments, and completing dressing changes.
Children who have been treated for brain tumors can face significant social challenges post treatment.
Researchers are analyzing the acceptability, feasibility, and validity of tools used for psychosocial assessment or screening at various time points across the course of treatment to help predict and improve outcomes for children with cancer and their families.