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American Spinal Injury Association https://asia-spinalinjury.org/ ASIA was created to promote and establish standards of excellence for all aspects of healthcare of individuals with spinal cord injury, educate the public on all aspects of spinal cord injury, and promote research.
Klippel-Feil Syndrome Alliance http://kfsalliance.org/ This website provides information about Klippel-Feil Syndrome, including facts about the disease, resources and research.