Lamia P. Barakat, PhD
Locations: Buerger Center for Advanced Pediatric Care; Center for Advanced Behavioral Healthcare; Main Hospital
Appointments and Referrals: 1-800-TRY-CHOP (1-800-879-2467)
Background
My role is to coordinate psychosocial programs for the Division of Oncology at Children's Hospital to provide the most effective support to our patients and their families. The child’s primary oncologist and/or social worker consult psychologists when they believe children with cancer and their families might benefit from additional support and intervention.
As the Director of Psychosocial Services and Behavioral Oncology Research, I’m proud of the comprehensive, integrated psychosocial care we provide to children with cancer and their families. These services include social work, child life, teacher and school support — as well as creative arts therapists and psychologists. Our psychosocial staff members are leaders in the field in psychosocial research on child, sibling and family adaptation to cancer and its treatment. They also excel in psychosocial assessment approaches to guide supportive interventions and interventions that promote resilience during treatment and into survivorship.
Through multiple psychosocial programs for all members of the family, the Division of Oncology provides essential services to help children and their families successfully navigate the diagnosis and treatment process. Typically, every child and family is assigned a social worker and child life specialist. They also have access to hospital teachers and educational liaison to aid school reentry.
In the Division of Oncology at Children's Hospital, psychological services consider the whole child in the context of their developmental level, family and home life, school and community supports and unique strengths and resources. We're interested in understanding who the child and family were before the diagnosis of cancer and what their hopes and dreams are for the future. Together, after standard psychological and behavioral assessment, we work to establish a plan to meet a set of common goals around management of the cancer and treatment, adaptation to hospitalization and transition back to home and school.
My own expertise lies in how children and their families come together to address cancer diagnosis and treatment: how they can collaborate and support each other to meet the challenges of childhood cancer, while improving their quality of life. My research involves examining both risk and resilience when chronic medical conditions in childhood are present, particularly within the family and in the larger cultural context. My work also seeks to understand health disparities relating to follow-up care and participation in clinical research. The ultimate goal is to improve access to the best possible medical and psychosocial treatment for all our children with cancer and their families.
In addition to my research program in psycho-oncology, I sit on the editorial board of the Journal of Pediatric Psychology and serve as a mentor to predoctoral psychology students, fellows and junior faculty through the DCAPBS Psychology Training Advisory Committee, the Department of Pediatrics Advisement Program.
Education and Training
Internship
University of Medicine and Dentistry of New Jersey, Newark, NJ
Fellowship
Pediatric Psychology - Division of Oncology, The Children’s Hospital of Philadelphia, Philadelphia, PA
Undergraduate Degree
BA - Villanova University, Villanova, PA
Graduate Degree
PhD - University of South Carolina School of Medicine, Columbia, SC
Titles and Academic Titles
Psychologist
Stephen and Susan Kelly Endowed Chair in Behavioral Oncology
Director, Psychosocial Services and Behavioral Oncology Research
Co-Division Chief for Academic Affairs, DCAPBS Division of Integrated Psychiatry, Psychology, and Behavioral Health
Director, Section of Behavioral Oncology, Center for Childhood Cancer Research
Professor of Clinical Psychology, Departments of Pediatrics and Psychiatry, Perelman School of Medicine of the University of Pennsylvania
Departments and Services
Areas of Focus
Laboratories & Research Programs
Research Topics
Publications
Papers
2022
Phillips, C.A., Barakat, L.P., Pollock, B.H., Bailey, L.C., & Beidas, R.S. (2022). Implementation science in pediatric oncology: a narrative review and future directions. Pediatric Blood and Cancer, 69(4), e29579. http://doi.org/10.1002/pbc.29579
Devine, K., Diorio, C., Richman, S., Henderson, A., Oranges, K. . . . Barakat, L.P., Croy, C., Mauro, J., Vitlip, L., Pasquariello, C., & Reilly, A. (2022). Guideline for pediatric patients with cancer receiving general anesthesia for procedures and imaging. Journal of Pediatric Hematology and Oncology, 44(4), e859-e865. doi: 10.1097/MPH.0000000000002430. Epub 2022 Mar 1. PMID: 35235547.
Schwartz, L.A., Lewis, A.M., Alderfer, M.A., Vega, G., Barakat, L.P. . . . Kazak, A.E. (2022). COVID-19 Exposure and Family Impact Scales for Adolescents and Young Adults (CEFIS-AYA). Journal of Pediatric Psychology, 47(6), 631-640. Advance access publication date: 23 April, 2022. https://doi.org/10.1093/jpepsy/jsac036
Darabos, K., Li, Y., O'Hagan, B., Palermo, T., King-Dowling, S., Jubelirer, T., Huang, J., Barakat, L. P., & Schwartz, L. A. (2022). Trajectories of pain severity and interference among adolescent and young adults with cancer: A micro-randomized study. The Clinical Journal of Pain, 38(7): 443-450. doi: 10.1097/AJP.0000000000001041
2021
Psihogios, A.M., Li, Y., Ahmed, A., Huang, J., Kersun, L.S., Schwartz, L.A. & Barakat, L.P. (2021). Daily text message assessments of 6-mercaptopurine adherence and its proximal contexts in adolescents and young adults with acute lymphoblastic leukemia: a pilot study. Pediatric Blood and Cancer, 68(2), e28767. dx.doi.org/10.1002/pbc.28767
King-Dowling, S., Psihogios, A.M., Hill-Kayser, C., Szalda, D., O'Hagan, B., Darabos, K., Daniel, L.C., Barakat, L.P., Fleisher, L., Maurer, L.A., Velázquez-Martin, B., Jacobs, L.A., Hobbie, W., Ginsberg, J.P., Vachani, C.C., Metz, J.M., & Schwartz, L.A. (2021). Acceptability and feasibility of survivorship care plans and an accompanying mobile health intervention for adolescent and young adult survivors of childhood cancer. Journal of Cancer Survivorship. First published: 08 January 2021; doi.org/10.1002/pbc.28884
Barakat, L.P., Vega, G., Madden, R., Askins, M., & Kazak, A.E. (2021). Longitudinal predictors of caregiver resilience at the end of childhood cancer treatment. Psycho-Oncology, 30(5), 747-755. First published: 11 January 2021; doi.org/10.1002/pon.5625
Daniel, L.C., Meltzer, L., Flannery, J., Forrest, C.B., & Barakat, L.P. (2021). Sleep practices in pediatric cancer patients: indirect effects on sleep disturbances and symptom burden. Psycho-Oncology, 30(6), 910-918. doi: 10.1002/pon.5669. PMID: 33686678
Psihogios, A.M., King-Dowling, S., Darabos, K., O’Hagan, B., Maurer, L., Young, J., Fleisher, L., Barakat, L.P., Szalda, D., Hill-Kayser, C.E., & Schwartz, L.A. (2021). Contextual predictors of engagement in a tailored mHealth intervention for adolescent and young adult cancer survivors. Annals of Behavioral Medicine, 55(12), 1220–1230. doi.org/10.1093/abm/kaab008
Kazak, A.E., Alderfer, M., Enlow, P., Lewis, A.M., Vega, G., Barakat, L.P., Kassam-Adams, N., Pai, A., Canter, K.S., Hildenbrand, A.K., McDonnell, G.A., Price, J., Schultz, C., Sood, E., & Phan, T-L. (2021). COVID-19 Exposure and Family Impact Scales (CEFIS): A caregiver measure of pandemic-related experiences. Journal of Pediatric Psychology, 46(5), 504–513. doi: 10.1093/jpepsy/jsab026. PMID: 33749794.
Dolan, J.G., Hill, D.L., Faerber, J.A., Palmer, L.E., Barakat, L.P., & Feudtner, C. (2021). Psychological distress and religious coping in parents of children recently diagnosed with dancer: a prospective cross-sectional study. Pediatric Blood and Cancer, 68(7), e28991. doi.org/10.1002/pbc.28991
Deatrick, J.A., Kazak, A.E., Madden, R.E., McDonnell, G.A., Stenman, K., Scialla, M.A., & Barakat, L.P. (2021). Using qualitative and participatory methods to refine implementation strategies: universal psychosocial screening in pediatric cancer. Implementation Science Communications, 2, 62. doi.org/10.1186/s43058-021-00163-4
Darabos, K., Berger, A., Barakat, L.P., & Schwartz, L. (2021). Cancer-related decision-making among adolescents, young adults, caregivers, and oncology providers. Qualitative Health Research, 31(13), 2355-2363. doi: 10.1177/10497323211037654. Epub 2021 Aug 12. PMID: 34382889
Psihogios, A.M., Rabbi, M., Ahmed, A., McKelvey, E.R., Li, Y., Laurenceau, J., Hunger, S.P., Fleisher, L., Pai, A.L., Schwartz, L.A., Murphy, S.A., & Barakat, L.P. (2021). Understanding adolescent and young adult 6-Mercaptopurine adherence and mHealth engagement during cancer treatment: Protocol for ecological momentary assessment. JMIR Research Protocols, 10(10):e32789. doi: 10.2196/32789. PMID: 34677129. PMCID: 8571686
Deatrick, J.A. Knafl, K.A., Knafl, G.J., Bressler, S.N., Stevens, E.M., Ver Hoeve, E.S., Zukin, H., Rhodes, G., Leri, D., Hobbie, W., & Barakat, L.P. (2021). Development of Training in Problem-Solving (TIPS) for Caregivers of Childhood Brain Tumor Survivors. Cancer Nursing, December 8, 2021. doi: 10.1097/NCC.0000000000001041
2020
Schwartz, L.A., Daniel, L.C., Henry-Moss, D., Bonafide, C.P., Li, Y., Psihogios, A.M., Butler, E.S., Szalda, D., ver Hoeve, E.S., Hobbie, W.L., Dowshen, N.L., Pierce, L., Kersun, L.S., & Barakat, L.P. (2020). Feasibility and acceptability of a pilot tailored text messaging intervention for adolescents and young adults completing cancer treatment. Psycho-oncology, 29(1), 164-172. doi: 10.1002/pon.5287
Kazak, A.E., Chen, F.F., Hwang, W-T., Askins, M.A., Vega, G., Kolb, E.A., Reilly, A., & Barakat, L.P. (2020). Stability and change in family psychosocial risk over six months in pediatric cancer and its association with medical and psychosocial healthcare utilization. Pediatric Blood and Cancer, 67(2). doi:10.1002/pbc.28051
Lichtenthal, W.G., Roberts, K.E., Catarozoli, C., Schofield, E., Holland, J.M., Fogarty, J.J., Coats, T.C., Barakat, L. P., . . . Breitbart, W., Wiener, L. (2020). Regret and unfinished business in parents bereaved by cancer: a mixed methods study. Palliative Medicine, 4(3):367-377. doi: 10.1177/0269216319900301. Epub 2020 Feb 5. PMID: 32020837; PMCID: PMC7438163
Hocking, M.C., Noll, R.B., Kazak, A.E., Brodsky, C., Phillips, P., & Barakat, L.P. (2020). Friendships in pediatric brain tumors survivors and non-central nervous system tumor survivors. Journal of Pediatric Psychology, 45(2):194-202. doi: 10.1093/jpepsy/jsz101.
Schapira, M., Stevens, E.M., Bailey, C., Bagatell, R., Tai, E., Hockman, L., Sharpe, J., Reiter, J., Calhoun, S., Shah, S., Silber, J., & Barakat, L.P. (2020). Mortality and late effects among pediatric cancer patients Treated on-trial versus off-trial: results of a matched cohort study. Cancer, 126(15), 3471-3482. doi.org/10.1002/cncr.32947
Psihogios, A.M., Schwartz, L.A., Ewing, K.B., Czerniecki, B., Kersun, L.S., Pai, A.L.H, Deatrick, J.A., & Barakat, L.P. (2020). Adherence to multiple treatment recommendations in adolescents and young adults with cancer: A mixed methods, multi-informant investigation. Journal of Adolescent and Young Adult Oncology, 9(6). Epub 11 May 2020. doi.org/10.1089/jayao.2020.0013
Daniel, L.C., Gross, J.Y., Meltzer, L.J., Flannery, J.L., Forrest, C.B., & Barakat, L.P. (2020). Clinical validity of the PROMIS Pediatric Sleep Scales in children receiving treatment for cancer. Pediatric Blood and Cancer, 67(9), e28535. doi: 10.1002/pbc.28535. Epub 2020 Jul 10. PMID: 32649043
Kazak, A.E., Deatrick, J.A., Scialla, M., Sandler, E., Madden, R., & Barakat, L.P. (2020). Implementation of family psychosocial risk assessment in pediatric cancer with the Psychosocial Assessment Tool (PAT) study protocol for a cluster randomized comparative effectiveness trial. Implementation Science, 15, 60. doi.org/10.1186/s13012-020-01023-w
al Ghriwati, N., Stevens, E., Velázquez‐Martin, B., Hocking, M.C., Schwartz, L.A., & Barakat, L.P. (2021). Family factors and health‐related quality of life within 6 months of completion of childhood cancer treatment. Psycho‐Oncology, 30, 408-416. doi.org/10.1002/pon.5592
Darabos, K., Barakat, L.P., Schapira, M., Hill-Kayser, C., & Schwartz, L.A. (2020). Association of demographic and cancer-specific factors on health behavior recommendations specific to cancer prevention and control among adolescent and young adult survivors of childhood cancer. Journal of Adolescent and Young Adult Oncology. Published Online: 18 Nov 2020. doi.org/10.1089/jayao.2020.0130
Deatrick, J.A., Knafl, G.J., Knafl, K.A., Knafl, G., Hardie, T., Bressler, S., Hobbie, W., Bratton, K., Diaz, M., De Guzman, C., Ludwick, A., Rees, A., Voisine, S., Barakat, L.P. (2020). Mothers’ and fathers’ views of family management and health-related quality of life for young adult survivors of childhood brain tumors. Journal of Psychosocial Oncology, 16, 1-17. PMID: 33191861. doi: 10.1080/07347332.2020.1844845
2019
Barakat, L.P., Stevens, E., Li, Y., Reilly, A., Deatrick, J.A., Goldstein, N.E., & Schwartz, L.A. (2019). Evaluation of the Pediatric Research Questionnaire for measuring attitudes towards cancer clinical trials among adolescents and young adults and their caregivers. Journal of Adolescent and Young Adult Oncology, 8(4). Published Online:7 Aug 2019.
Hocking, M.C., Paltin, I., Belasco, C., & Barakat, L.P. (2019). Acceptability and feasibility in a pilot randomized clinical trial of computerized working memory training and parental problem-solving training with pediatric brain tumor survivors. Journal of Pediatric Psychology, 44: 669-678.
Psihogios, A.M., Fellmeth, H., Schwartz, L.A., & Barakat, L.P. (2019). Family functioning and medical adherence across children and adolescents with chronic health conditions: a meta-analysis. Journal of Pediatric Psychology, 44(1), 84–97.PMID: 29982694
2016
Daniel, L.C., Li, Y.B., Kloss, J.D., Reilly, A., & Barakat, L.P. (2016). The impact of dexamethasone and prednisone on sleep in children with acute lymphoblastic leukemia. Supportive Care in Cancer. doi 10.1007/s00520-016-3234-y.
Daniel, L.C., Schwartz, L.S., Mindell, J.A., Tucker, C.A., Barakat, L.P. (2016). Initial validation of the sleep disturbances in pediatric cancer model. Journal of Pediatric Psychology. doi: 10.1093/jpepsy/jsw008
Landier, W., Ahern, J., Barakat, L.P., Bingen, K.M., Bondurant, P.G. . . . Hockenberry, M. (2016). Patient/family education for newly diagnosed pediatric oncology patients: consensus recommendations from a Children’s Oncology Group expert panel. Journal of Pediatric Oncology Nursing. Published online. doi: 10.1177/1043454216655983
Pierce, L., Alderfer, M.A., Hocking, M.C., Schwartz, L.A., Kazak, A.E., & Barakat, L.P. Caregiver distress and patient health-related quality of life: psychosocial screening during pediatric cancer treatment. Psycho-oncology. doi: 10.1002/pon.4171
2015
Christiansen, H.L., Bingen, K., Hoag, J.A., Karst, J.S., Velázquez-Martin, B., & Lamia P Barakat, L.P. (2015). Providing children and adolescents opportunities for social interaction as a standard of care in pediatric oncology. Pediatric Blood and Cancer: Special Issue on Psychosocial Standards of Care in Pediatric Oncology, 52(S5), S724-S749. doi: 10.1002/pbc.25774
Hocking, M.C., McCurdy, M., Turner, E., Kazak, A.E., Noll, R.B., Phillips, P. & Barakat, L.P. (2015). Social competence in pediatric brain tumor survivors: application of a model from social neuroscience and developmental psychology. Pediatric Blood and Cancer, 62(3), 375-384. doi:10.1002/pbc.25300
Hocking, M.C., Hobbie, W.L, Deatrick, J.A., Hardie, T.L., & Barakat, L.P. (2015). Family functioning mediates the association between neurocognitive functioning and health-related quality of life in young adults survivors of childhood brain tumors. Journal of Adolescent and Young Adult Oncology, 4(1), 18-25.
Hildenbrand, A.K., Barakat, L.P., Alderfer, M.A., & Marsac, M.L. (2015). Coping and coping assistance among children with sickle cell disease and their parents. Journal of Pediatric Hematology and Oncology, 37(1), 25-34. doi:10.1097/MPH.0000000000000092
2014
Barakat, L.P., Galtieri, L., Szalda, D., & Schwartz, L.A. Assessing the psychosocial needs and program preferences of adolescents and young adults with cancer. Supportive Care in Cancer.
Daniel, L.C, Li, Y., Smith, K., Tarazi, R.A., Robinson, M.R., Patterson, C.A., Smith-Whitley, K., Stuart, M., & Barakat, L.P. Lessons learned from a randomized controlled trial family-based intervention to promote school functioning for school-age children with sickle cell disease. Journal of Pediatric Psychology.
Hobbie, W.L., Ogle, S., Reilly, M., Barakat, L.P., Lucas, M., Ginsberg, J., Fisher, M., Volpe, E.M., & Deatrick, J.A. Adolescent and young adult survivors of childhood brain tumors: Life after treatment in their own words. Cancer Nursing.
Barakat, L.P., Li, Y., Hobbie, W., Hardie, T., Ogle, S., Volpe, E., Szabo, M., Reilly, M., & Deatrick, J.A. Family functioning as a predictor of health-related quality of life among adolescent and young adult survivors of childhood brain tumors. Psycho-oncology. 2014 Aug 11. doi: 10.1002/pon.3649. [Epub ahead of print]
Patterson, C.A., Chavez, V., Mondestin, V., Deatrick, J.A., Li, Y., & Barakat, L.P. (In press). Clinical trial decision-making in pediatric sickle cell disease: a qualitative study of perceived benefits and barriers to participation. Journal of Pediatric Hematology and Oncology.
Marsac, M.L., Kassam-Adams, N., Delahanty, D.L., Widaman, K., & Barakat, L.P. (2014). Posttraumatic stress following acute medical trauma in children: a proposed model of bio-psycho-social processes during the peri-trauma period. Clinical Child & Family Psychology Review, 17(4), 399-411. doi: 10.1007/s10567-014-0174-2.
Marsac, M.L., Klingbeil, O.G., Hildenbrand, A.K., Alderfer, M.A., Kassam-Adams, N., Smith-Whitley, K., & Barakat, L.P. (2014). Development of the Cellie Coping Kit for sickle cell disease. Clinical Practice in Pediatric Psychology, 2(4), 389-399. doi: 10.1037/cpp0000062
Lucas, M.S., Barakat, L.P., Ulrich, C.M., & Deatrick, J.A. (2014). Expectations for function and independence by childhood brain tumor survivors and their mothers. Narrative Inquiry in Bioethics, 4(3), 233-251. doi: 10.1353/nib.2014.0068
Hocking, M.C., Kazak, A.E., Schneider, S., Barkman, D., Barakat, L.P., & Deatrick, J. (2014). Parent perspectives on family-based psychosocial interventions in pediatric cancer: A mixed-methods approach on parent perspectives. Supportive Care in Cancer. doi: 10.1007/s00520-013-2083-1
Barakat, L.P., Daniel, L.C., Smith, K.E., Robinson, M.R., & Patterson, C.A. (2014). Parental problem solving moderates the association of sickle cell complications with health-related quality of life for school-age children. Journal of Clinical Psychology in Medical Settings, 21(1), 56-65. doi: 10.1007/s10880-013-9379-7. PMCID: PMC3943996
Deatrick, J.A., Hobbie, W., Ogle, S., Fisher, M., Barakat, L.P., Hardie, T., Reilly, M., Li, Y., & Ginsberg, J. (2014). Competence in caregivers of adolescent and young adult childhood brain tumor survivors. Health Psychology, 33(10), 1103-1112. doi:10.1037/a0033756
Schwartz, L.A., Daniel, L.C., Brumley, L.D., Barakat, L.P., Wesley, K., & Tuchman, L. (2014). Review of measures of readiness to transition to adult health care for youth with chronic physical health conditions. Journal of Pediatric Psychology, 39(6), 588-601. doi:10.1093/jpepsy/jsu028
Daniel, L.C., Barakat, L.P., Danzi, L.E., & Schwartz, L.A. (2014). Health-related hindrance of personal goals of adolescents with cancer: The role of the interaction of race/ethnicity and income. Journal of Clinical Psychology in Medical Settings, 25, 155-164. doi: 10.1007/s10880-014-9390-7
Barakat, L.P., Schwartz, L.A., Reilly, A., Deatrick, J.A., & Balis, F. (2014). Perceived barriers and benefits of Phase III clinical trials participation for adolescents and young adults with cancer (AYA): A qualitative study of AYA decision making experiences. Journal of Adolescent and Young Adult Oncology, 3(1), 3-11. PMID: 24669354
Robinson, M.R., Daniel, L.C., O’Hara, E.A., Szabo, M.M., & Barakat, L.P. (2014). Insurance status as a sociodemographic risk factor for functional outcomes and health-related
quality of life among youth with sickle cell disease. Journal of Pediatric Hematology/Oncology, 36(1), 51-56. doi: 10.1097/MPH.0000000000000013
2013
Schwartz, L.A., Deatrick, J., Bevans, K., Hobbie, W., Barakat, L.P., & Tuchman, L. (2013). Stakeholder validation of a model of readiness for transition to adult care. JAMA Pediatrics, 167(10), 939-46. doi:10.1001/jamapediatrics.2013.2223
Smith, K.E., Patterson, C.A., Szabo, M.M., Tarazi, R.A., & Barakat, L.P. (2013). Predictors of academic functioning of school age children with sickle cell disease. Advances in School Mental Health Promotion, 6(1), 5-20. doi:10.1080/1754730X.2012.760919
Noll, R.B., Patel, S. Embry, L., Hardy, K.K., Pelletier, W., Annett, R., Patenaude, A., Lown, A., Sands, S., & Barakat, L.P. (2013). Children’s Oncology Group’s 2013 blueprint for research: Behavioral Sciences. Pediatric Blood and Cancer, 60, 1048-1054. doi: 10.1002/pbc.24421
Barakat, L.P., Patterson, C.A., Mondestin, V., Chavez, V., Austin, T., Robinson, M.R., Smith-Whitely, K., & Cohen, R. (2013). Measuring perceived barriers and benefits to pediatric clinical trials participation. Contemporary Clinical Trials, 34, 218-226. doi: 10.1016/j.cct.2012.11.001
Abstracts
2015
Deatrick, J., Hobbie, W. Barakat, L.P., Ogle, S. Reilly, M., Hardie, T. Toth, J., Knafl, G. Knafl, K. (October, 2015). Using Mixed Methods Analyses to Tailor Theory-Based Family Interventions. Special Topics Conference: Emerging Areas of Family Health Research Across the Lifespan. Council for the Advancement of Nursing Science, Washington, DC.
Books
2015
Salamon, K.S., Schwartz, L.A., & Barakat, L.P. (In press). Intervention to promote family and school functioning and health-related quality of life in pediatric hematology and oncology. M. Ferrari and C. DeMichelis (Eds.), Promoting Resilience of Children in a Medical Context. New York: Springer.
2014
Barakat, L.P., Daniel, L.C., & Sills, R. (2014). Functional Symptoms in Hematology/Oncology. In R. Anbar (Ed.) Functional Symptoms in Pediatric Diseases: A Clinical Guide. New York: Springer.
Daniel, L.C., Hocking, M., & Barakat, L.P. (2014). Cancer. In M.C. Roberts, B.S. Aylward, & Y.P. Wu (Eds.), Clinical Practice of Pediatric Psychology: Cases and Service Delivery. New York: Guilford.
2013
Dampier, C., & Barakat, L.P. (2013). Sickle cell pain. In P. McGrath, B.J. Stevens, S.M. Walker, and W. Zempsky (Eds.), The Oxford Textbook of Paediatric Pain. New York: Oxford.
2012
Barakat, L.P., Hocking, M., & Kazak, A.E. (2012). Child Health Psychology. In I.B. Weiner (Ed.), A. Nezu, C. Nezu, & P. Geller (Vol. Eds.), Handbook of Psychology: Health Psychology (2nd edition, vol. 9). New York: Wiley.
2003
Barakat, L.P., Kunin-Batson, A., & Kazak, A.E. (2003). Child Health Psychology. In I.B. Weiner (Ed.), A. Nezu, C. Nezu, & P. Geller (Vol. Eds.), Handbook of Psychology: Health Psychology (vol. 9). New York: Wiley.
2000
Barakat, L.P. (2000). Interest Box: Family and child adjustment to cognitive aspects of cancer in children. In E. Zillmer and M. Spiers (Eds.), Principles of Neuropsychology. Belmont, CA: Brooks/Cole.
1999
Barakat, L.P., & Kazak, A.E. (1999). Family issues related to cognitive aspects of chronic illness in children. In R.T. Brown (Ed.), Cognitive Aspects of Chronic Illness in Children. New York: Guilford.
Chapters
2012
Mostoufi-Moab, S., Barakat, L.P., & Bauer, A. (2012). Editorial: Quality of life in adolescent patients with differentiated thyroid cancer: moving beyond survival. Journal of Clinical Endocrinology and Metabolism, 97(10), 3453-3456. PMID: 23043196 doi: 10.1210/jc.2012-3070
Barakat, L.P. (2012). Advancing the family management style framework: Incorporating social ecology. Invited editorial for the Special Issue on the Family Management Style Framework. Journal of Family Nursing, 18(1), 5-10. doi:10.1177/1074840711430665
2011
Barakat, L.P., & Alderfer, M.A. (2011). Introduction to the special issue: Advancing the science of family assessment in pediatric psychology. Journal of Pediatric Psychology. 36(5), 489-493.
2009
Barakat, L.P., Nicolaou, D.C., O’Hara, E.A., & Allen, S.L. (2009). Sickle cell disease. In W. O’Donohue & L. Tolle (Eds.), Behavioral Approaches to Chronic Disease in Adolescence: a guide to integrated care (pp. 253-267). New York: Springer. doi: 10.1007/978-0-387-87687-0_19
Barakat, L.P., Gonzalez, E.R., & Daniel, L.C. (2009). Positive psychology in pediatric psychology. In M. Roberts and R. Steele (Eds.), Handbook of Pediatric Psychology (4th edition) (pp. 763-773). New York: Guilford.
2007
Barakat, L.P. & Boyer, B. (2007). Pediatric psychology. In B. Boyer and Paharia, M.I. (Eds.), Comprehensive Handbook of Clinical Health Psychology (pp. 371-394). Hoboken, NJ: Wiley & Sons.
Barakat, L.P., Gonzalez, E.R., & Weinberger, B.S. (2007). Chronic medical illness. In R.W. Christner, J. Stewart-Allen, and A. Freeman (Eds.) Handbook of Cognitive-Behavior Therapy (CBT) Groups with Children and Adolescents: Specific Settings and Presenting Problems (pp. 427-446). New York: Routledge.
2006
Radcliffe, J., Barakat, L.P., & Boyd, R. (2006). Family issues. In R.T. Brown (Ed.), Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsychosocial Approach (pp. 496-513). New York: Oxford.
Barakat, L.P., Lash, L., Lutz, M.J., & Nicolaou, D.C. (2006). Psychosocial adaptation of children and adolescents with sickle cell disease. In R.T. Brown (Ed.), Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsychosocial Approach (pp. 471-495). New York: Oxford.
Posters and Presentations
2015
Kovalsky, D., Hildenbrand, A. K., Kassam-Adams, N., Barakat, L. P., Delahanty., & Marsac, M. L. (November, 2015). Utility of Appraisals During Peri-Trauma as Predictor of PTSS Following Pediatric Injury. Poster accepted for the International Society for Traumatic Stress Studies 31st Annual Meeting, New Orleans, LA.
Hildenbrand, A. K., Kassam-Adams, N., Barakat, L. P., Kohser, K., & Marsac, M. L. (November, 2015). Relationship between emergency department pain and subsequent posttraumatic stress in pediatric injury. Poster accepted for the International Society for Traumatic Stress Studies 31st Annual Meeting, New Orleans, LA.
Stevens, E.M., Patterson, C.A., Li, Y.B., Smith-Whitley, K., & Barakat L.P. (September, 2015). Factors related to mistrust of clinical trials research among adolescent/young adults with sickle cell disease and caregivers of children with sickle cell disease. Oral Presentation, Sickle Cell Disease Association of American (SCDAA) 43rd Annual Convention, Baltimore, MD.
Deatrick, J.A., Hobbie, W., Ogle, S., Reilly, M., Hardie, T., Barakat, L.P., Knafl, K.A., & Knafl, G. (August, 2015). Patterns of family management of young adult survivors of childhood brain tumors and their relationship to child & family functioning. Accepted for oral presentation at the International Family Nursing Conference, Odense, Denmark.
Hocking, M.D., Quast, L., Fleischer, J.G., McCurdy, M., Turner, E., Briggs, N., Barakat, L.P., & Deatrick, J.A. (July, 2015). Examining Parents’ Perspectives of Social Competence in Pediatric Brain Tumor Survivors: A Mixed-Methods Approach. Accepted for poster presentation at the 2015 World Congress of Psycho-Oncology and Psychosocial Academy Workshops, Washington, DC.
McCurdy, M.D., Quast, L.F., Turner, E., Pulaski, S., Black, C., Paltin, I., Barakat, L.P., & Hocking, M.C. (July, 2015). A Qualitative Examination of the Feasibility of a Computerized Cognitive-Training Program in Long-Term Pediatric Brain Tumor Survivors. Accepted for poster presentation at the 2015 World Congress of Psycho-Oncology and Psychosocial Academy Workshops, Washington, DC.
Quast, L., Fleischer, J.G., McCurdy, M., Turner, E., Kazak, A.E., Barakat, L.P., & Hocking, M.C. (July, 2015). Illness-Related Family Life Difficulty of Pediatric Brain Tumor Survivors at the End of Tumor-Directed Therapy. Accepted for poster presentation at the 2015 World Congress of Psycho-Oncology and Psychosocial Academy Workshops, Washington, DC.
Barakat, L.P., Britton, E., David, K., Reilly, A., Rogerwick, S., Sullivan, J., & Schwartz, L. (July, 2015). The Psychosocial Services Program of The Children’s Hospital of Philadelphia (CHOP) Cancer Center: translating research into practice. Accepted for oral presentation as part of a symposium on models of care in pediatric psycho-oncology at the 2015 World Congress of Psycho-Oncology and Psychosocial Academy Workshops, Washington, DC.
Turner, E.M., McCurdy M.D., Quast, L., Kazak, A.E., Barakat, L.P., Hocking, M.C. (June, 2015). The Association between Neuropsychological Functioning and Cognitive
Strategies for Learning in Pediatric Brain Tumor Survivors. Poster presentation at the meeting of the American Academy of Clinical Neuropsychology, San Francisco, CA.
McCurdy, M.D., Turner, E., Barakat, L.P., Hobbie, W., Deatrick, J., & Hocking, M.C. (June, 2015). Processing speed mediates the relationship between radiotherapy exposure and executive functioning in young-adult survivors of childhood brain tumor. Poster presentation at the meeting of the American Academy of Clinical Neuropsychology, San Francisco, CA.
Daniel, LC, Barakat, LP, Butler, E., Diguiseppe, A, & Schwartz, LA. (June, 2015). Sleep in Adolescents and Young Adults in the Year Post Cancer Treatment. Poster presentation at the Associate Professional Sleep Societies Annual Meeting, Seattle, WA.
Artz, Z., Harms, L., Sullivan, J., & Barakat, L.P. (May, 2015). Integrating psychosocial education in patient/family education for caregivers of newly diagnosed children with cancer. Oral presentation at the annual meeting of the American Association of Pediatric Oncology Social Workers, Whitefish, MT.
Quast, L., Fleischer, J.G., McCurdy, M., Turner, E., Kazak, A.E., Barakat, L.P., & Hocking, M.C. (April, 2015). Health-related quality of life in parents of pediatric brain tumor survivors at the end of tumor-directed therapy. Poster presentation at the 36th Annual Meeting of the Society for Behavioral Medicine, San Antonio, TX.
Marsac, M. L., Ciesla, J., Barakat, L.P., Hildenbrand, A.K., Delahanty, D.L., Widaman, K., Winston, F.K., Kassam-Adams, N. (April, 2015). The role of cognitive appraisals and coping in predicting posttraumatic stress following pediatric injury. Poster presentation at the Society of Pediatric Psychology Annual Conference, San Diego, CA.
Cole, D., Barakat, L.P., Marsac, M. L. (April, 2015). Dissemination of evidence-based tools to promote adaptive coping with chronic illness: The Cellie Coping Kit as an example. Paper presentation at the Society of Pediatric Psychology Annual Conference, San Diego, CA.
Daniel, L.C., Kahl, D., Schwartz, L.A., & Barakat, L.P. (April, 2015). Development of the Sleep Disturbances in Pediatric Cancer (SDPC) Model. Poster presentation at the Society of Pediatric Psychology annual conference, San Diego, CA.
Hocking, M.C., Quast, L., Fleischer, J.G., McCurdy, M., Turner, E., Kazak, A.E., & Barakat, L.P. (April, 2015). Family management and health-related quality of life and adaptive functioning in pediatric brain tumor survivors at the end of tumor-directed therapy. Poster presentation at the Society of Pediatric Psychology annual conference, San Diego, CA.
Schwartz, L.A., Bonafide, C., Butler, E., Daniel, L.C., & Barakat, L.P. (April, 2015). A text messaging intervention for adolescents and young adults recently off treatment for cancer. Presented as part of symposium on Innovative Interventions for Children, Adolescents and Young Adults with Hematologic and Oncologic Conditions presentation at the Society of Pediatric Psychology annual conference, San Diego, CA.
Szalda, D.E., Pultman, S., Sullivan, J., Barakat, L.P., & Schwartz, L.A. (March, 2015). Improving the Care of Adolescent and Young Adults (AYA) Oncology: Educational programming for pediatric oncology nurses. Poster presentation/published abstract at the annual meeting of the Society for Adolescent Health and Medicine, Los Angeles, CA.
McCurdy, M.D., Turner, E., Barakat, L.P., Hobbie, W., Deatrick, J., Paltin, I., & Hocking, M.C. (February, 2015). Treatment intensity predicts self-awareness of executive functioning in young-adult survivors of childhood brain tumor. Poster presentation at the meeting of the International Neuropsychological Society, Denver, CO.
2014
Pierce, L.A., Fleischer, J., Alderfer, M.A., Hocking, M.C., Kazak, A.E., & Barakat, L.P. (October, 2014). Caregiver distress and patient health-related quality of life: psychosocial screening during pediatric cancer treatment. Paper presentation at the psycho-oncology preconference of the meeting of the International Society of Pediatric Oncology, Toronto, Ontario, Canada.
Brumley, L.D., Deatrick, J.A., Barakat, L.P., Ramharrack, F., Daniel, L.D., Palmer, S., Pierce, L.A., & Schwartz, L.A. (October, 2014). Development of a new measure of goal-based quality of life for adolescents and young adults with cancer. Paper presentation at the psycho-oncology preconference of the meeting of the International Society of Pediatric Oncology, Toronto, Ontario, Canada.
Butler, E.S., Daniel, L.C., Barakat, L.P. (October 2014). Parenting stress as a moderator between health-related quality of life and anxiety for children with Sickle Cell Disease. Poster presentation at the Annual Convention of the Sickle Cell Disease Association of America, Baltimore, MD.
Daniel, L.C., Barakat, L.P., Li, Y., Smith, K., Morrison, M., Tarazi, R., Robinson, M.R., Patterson, C.A., Smith-Whitley, K., & Stuart, M. (October, 2014). Family-based problem-solving intervention for school-age children with sickle cell disease. Poster presentation at the Sickle Cell Disease Association Annual Convention, Baltimore, MD.
Marsac, M.L., Klingbeil, O., Hildenbrand, A., Alderfer, M.A., Smith-Whitley, K., & Barakat, L.P. (October, 2014). Translating evidence into intervention: The Cellie Coping Kit for Sickle Cell Disease. Paper presentation at the 42nd Annual Meeting of the Sickle Cell Disease Association of America, Baltimore, MD.
Marsac, M.L., Barakat, L.P, Kohser, K.L., Donlon, K., Zajac, L., & Kassam-Adams, N. (August, 2014). Cognitive appraisals and posttraumatic stress symptoms in parents of children with injuries. Presented as part of symposium, Parents of a Critically Ill/Injured Child: Psychosocial Adjustment and Intervention, at the Annual Convention of the American Psychology Association, Washington, DC.
Turner, E., McCurdy, M.D., Barakat, L.P., Hobbie, W., Deatrick, J., Paltin, I., & Hocking, M.C. (June, 2014). Impaired Awareness of Executive Deficits in Young Adult Survivors of Childhood Brain Tumor: Impact on Parent and Family Quality of Life. Poster presentation at the American Academy of Clinical Neuropsychology, New York, NY.
McCurdy, M.D., Turner, E., Fisher, M., Barakat, L.P., Hobbie, W., Deatrick, J., & Hocking, M.C. (June, 2014). Predicting Cognitive Efficiency Following Brain Tumor Treatment in Childhood: Utility of the Intensity Treatment Rating Scale. Poster presentation at the American Academy of Clinical Neuropsychology, New York, NY.
Morrison, M., Kassam-Adams, N., Barakat, L.P., Kohser, K., & Marsac, M. (June, 2014). Child cognitive appraisals predict later post traumatic stress symptoms following pediatric injury. Poster presentation at The Children’s Hospital of Philadelphia LEND Research Day.
Schwartz, L.A., Barakat, L.P., Daniel, L.C., Dowshen, N., Butler, E., Hobbie, W.L., Kersun, L., Pierce, L., Wasik, M., Szalda, D., Brumley, L.D., Li, Y., & Bonafide, C. (May, 2014). Proof of Concept of an Infrastructure for Text Messaging Interventions at CHOP: Development and Evaluation of THRIVE (Texting, Health Resources to Inform, MotiVate and Engage. Presented at the 4th Annual Quality and Patient Safety Day, The Children’s Hospital of Philadelphia.
Marsac, M.L., Barakat, L.P., Kohser, K.L., Kassam-Adams, N., Alderfer, M.A. (April, 2014). Supporting children through cancer: development and dissemination of the Cellie Cancer Coping Kit. Poster presentation at Association of Pediatric Oncology Social Workers Annual Conference, Philadelphia, PA.
Deatrick, J.A., Ogle, S., Hobbie, W., Volpe, E., Barakat, L.P., & Hocking, M.C. (April, 2014). Families and their impact on HRQOL: perspectives of adolescent and young adult brain tumor survivors. Poster presentation at the Sixth International Nursing Conference on Child and Adolescent Cancer Survivorship, Philadelphia, PA.
Schwartz, L.A., Butler, E., Brumley, L.D., Barakat, L.P., Deatrick, J.A., Daniel, L.C., Hobbie, W.L., Ginsberg, J.P., Szalda, D., Bevans, K., Kazak, A.E., & Tuchman, L.K. (March, 2014). Using theory and PROMIS methods to develop the Transition Readiness Inventory (TRI) for adolescent and young adult survivors of childhood cancer. Oral presentation at the Society of Pediatric Psychology Annual Conference.
Klingbeil, O., Hildenbrand, A.K., Alderfer, M.A., Kassam-Adams, N., Smith-Whitley, K., Barakat, L.P., Marsac, M.L. (March, 2014). Coping influence of the Cellie Coping Kit for sickle cell disease. Poster presentation at the Society of Pediatric Psychology Annual Conference.
Hocking, M.C., Hobbie, W., Hardie, T., Barakat, L.P., Deatrick, J.A., (March, 2014). Young adult survivors of childhood brain tumors and their mother mothers: Associations between neurocognitive and family functioning and maternal demand and worry. Poster presentation at the Society of Pediatric Psychology Annual Conference, Philadelphia, PA.
Daniel, L.C., Schwartz, L.A., & Barakat, L.P. (March, 2014). Testing a model of sleep disturbance in pediatric oncology. Poster for presentation at the Society of Pediatric
Psychology Annual Conference, Philadelphia, PA.
Fleischer, J., Daniel, L.C., Tarazi, R.A., Patterson, C.A., & Barakat, L.P. (March, 2014). Educational needs and resources of children with sickle cell disease: a comparative analysis. Poster presentation at the Society of Pediatric Psychology Annual Conference, Philadelphia, PA.
Szalda, D., Pultman, S., Schwartz, L.A., Reilly, A., & Barakat, L.P. (February, 2014). AYA sexual health in oncology: current practices and quality improvement. Presentation
at American Psychosocial Oncology Society Annual Conference, Tampa, FL.
Marsac, M.L., Barakat, L.P., Alderfer, M.A., Kassam-Adams, N., Klingbeil, O., & Hildenbrand, A.K. (February, 2014). Development and dissemination of the Cellie Cancer Coping Kit. Presentation at American Psychosocial Oncology Society Annual Conference, Tampa, FL.
2013
Paltin, I., Minturn, J., Fisher, M., & Barakat, L.P. (May, 2013). Prospective case study of two 2-yeaer-olds with infratentorial ependymoma treated with proton radiation therapy. Poster presentation at the Annual Meeting of the American Academy of Clinical Neuropsychology, Chicago, IL.
Daniel, L.C., Patterson, C.A., Robinson, M.R., & Barakat, L.P. (April, 2013). Child and caregiver psychological adjustment predicts health-related quality of life and disease management in pediatric sickle cell disease. Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.
Kazak, A.E., Alderfer, M.A., Hocking, M.C., Schwartz, L.A., & Barakat, L.P. (April, 2013). Check-in About Recent Experiences and Strengths (CARES): A web-based tablet-administered caregiver-report assessment protocol. Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.
Hildenbrand, A. K., Barakat, L. P., Alderfer, M. A., Smith-Whitley, K., & Marsac, M. L. (April, 2013) Coping and coping assistance among children with sickle cell disease and their parents. Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.
Schwartz, L. A., Brumley, L. D., Barakat, L. P., Deatrick, J. A., Daniel, L., Hobbie, W. L., Bevans, K., Kazak, A. E., Ginsberg, J. P., Tuchman, L. K. (April, 2013). Development of a New Transition Readiness Measure for Adolescent and Young Adult Survivors of Pediatric Cancer. Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.
Tuchman, L. K., Deatrick, J., Danzi, L. E., Daniel, L., Barakat, L. P., Hobbie, W., Ginsberg J. P., Kazak A. E., Bevans, K., Schwartz, L. A. (March, 2013). The Content Validity of an Initial Item Pool of a New Transition Readiness Measure. Poster presented at the 2013 Annual Meeting of the Society for Adolescent Health and Medicine, Atlanta, GA.
Invited lectures
2014
Living with Hope: Supporting the Unique Needs of Adolescents and Young Adults (AYAs) with Cancer and their Siblings. Children’s Cancer Network Building a Strong Future Annual Survivorship Conference, Phoenix, AZ, Sept 2014.
Pediatric Medical Traumatic Stress and Growth following Treatment for Childhood Cancer. Children’s Cancer Network Building a Strong Future Annual Survivorship Conference, Phoenix, AZ, Sept 2014.
Health-related Quality of Life of Adolescents and Young Adults with Cancer. Differential Diagnosis in Pediatric Oncology: Childhood Cancer. CHOP Spring CME Dinner Lecture Series, Philadelphia, PA, May 2014.
Pediatric Sickle Cell Disease: Update on the Psychosocial Research Program. The Children’s Hospital of Philadelphia Sickle Cell Center Parent Support Group, Philadelphia, PA, April 2014.
Health-related Quality of Life of Children with Sickle Cell Disease. Regional Meeting of the Association of Pediatric Hematology and Oncology Nurses. Radnor, PA, March 2014.
2013
Health-related Quality of Life of Adolescents and Young Adults with Cancer. Annual Thyroid Cancer Conference, Philadelphia, PA, Sept 2013.
Pediatric Traumatic Stress and Growth in Pediatric Oncology. CHOP Cancer Center Webinar Series, Sept 2013.
Awards and Honors
2020, Stephen and Susan Kelly Endowed Chair in Behavioral Oncology
2019, Pitcher of Hope Award from the Children’s Hospital of Philadelphia Cancer Center and Alex’s Lemonade Stand Foundation Pitcher
2010 & 2013, Society of Pediatric Psychology Martin P. Levin Mentorship Award Nomination
2008, Pennsylvania Psychological Association of Graduate Students Community Service Project Award
2008, Mentor of the Year Award, Graduate Student Association, Drexel University
2008, Leadership Institute on Women in Psychology, American Psychological Association, Selected as Member of Inaugural Class
2007, Christian R. and Mary F. Lindback Award for Distinguished Teaching Nomination, College of Arts and Sciences, Drexel University
2004, Rafiki Award, Division of Student Life, Drexel University
2001, Allen Rothwarf Award for Teaching Excellence, Drexel University
1990, Dissertation Award, Science Directorate, American Psychological Association
1985, Who’s Who Among American College Students
1985, Psi Chi, Psychology National Honor Society
1985, Graduated with Honors, Magna Cum Laud, Villanova University
1985, Bernard L. Bonniwell Award for Academic Excellence in Psychology, Villanova University
Editorial and Academic Positions
Editorial positions
Ad Hoc Reviewer
Health Psychology
JAMA Pediatrics
Journal of Adolescent and Young Adult Oncology
Journal of Clinical Oncology
Journal of Pediatric Hematology/Oncology
Pediatrics
Pediatric Blood and Cancer
Psycho-oncology
Academic and Institutional Committees
2021-present, Research Steering Committee, Department of Child and Adolescent Psychiatry and Behavioral Sciences
2020-present, CHQA Behavioral Health Steering Committe
2017-present, Executive Committee, Department of Child and Adolescent
Psychiatry and Behavioral Sciences
2016-present, CRISSP Faculty Advisory Committee
2015-present, Department of Pediatrics Faculty Advisement Program, Perelman School of Medicine of the University of Pennsylvania
2010-present, Academic Affairs Committee, Department of Child and Adolescent Psychiatry and Behavioral Science
Leadership and Memberships
Memberships in Professional Organizations
International
Dutch Cancer Society
- 2012, Ad Hoc Reviewer
Flemish League Against Cancer
- 2014, Ad Hoc Scientific Reviewer
National
American Psychological Association (APA), Fellow
Association of Psychologists in Academic Health Centers, Member
Society of Behavioral Medicine, Member
Society of Clinical Child and Adolescent Psychology (APA Division 53), Fellow
Society of Pediatric Psychology (APA Division 54), Fellow