Stories to inspire
Beating the AMPS monster: Aamira’s story
After a simple softball injury left 9-year-old Aamira in a wheelchair and battling severe amplified pain, her family feared the worst. At CHOP’s Center for Amplified Musculoskeletal Pain Syndrome, an intensive, non-pharmacologic rehabilitation program helped her reclaim her strength, return to dance and softball, and defeat what she called the “AMPS monster.”
Leading with Love: The Mom Behind CHOP’s Powerhouse Fundraiser
When her son Baron was diagnosed with mitochondrial disease, Kim Burd turned her family’s journey at CHOP into the inspiration behind the Powerhouse Fundraiser—a movement uniting families, doctors, and donors to fuel lifesaving research.
Congenital Hyperinsulinism: Oliver’s Story
When 6-month-old Oliver began seizing in the middle of the night, his family discovered he had a rare condition called congenital hyperinsulinism. Their journey led them to CHOP’s world-renowned HI Center — and to nearly two decades of giving back to advance research and care.
Celiac Disease: Cameron’s Story
New Jersey parents credit CHOP for helping their toddler bounce back after celiac diagnosis and treatment.
Health and Well-being Clinic: Miaya and Micah's Story
Miaya and Micah were bigger than other kids. Instead of feeling ashamed, they changed their lifestyles — and their BMI — with a focus on health, not weight.
Brandon’s Story: Ketogenic Diet Cures Myoclonic Atonic Epilepsy
Read about Brandon's journey from dangerously uncontrollable seizures to seizure-freedom for the past 10 years.
Experimental gene therapy for hemophilia B: Bill’s story
For nearly 50 years, Bill needed frequent treatment for hemophilia — often every few days. A gene therapy changed everything.
Congenital Hyperinsulinism: Eliza’s Story
Eliza’s family brought her to CHOP for its expertise in hyperinsulinism. She became the 600th patient to have pancreas surgery and went home cured.
Kylen’s Story: Ketogenic Diet to Control Seizures
Just a few days after he was born, Kylen suffered four seizures and was diagnosed with epilepsy.
Killian’s Story: Medical Management of the IMPDH2 Genetic Variant
Call it a mother’s intuition. Though Killian appeared to be growing and developing normally during prenatal appointments, Jennifer couldn’t stop worrying something was wrong.