Stories to inspire
Kylen’s Story: Ketogenic Diet to Control Seizures
Just a few days after he was born, Kylen suffered four seizures and was diagnosed with epilepsy.
Killian’s Story: Medical Management of the IMPDH2 Genetic Variant
Call it a mother’s intuition. Though Killian appeared to be growing and developing normally during prenatal appointments, Jennifer couldn’t stop worrying something was wrong.
Surgery for a Brain Tumor: Julia's Story
While Julia’s diagnosis of a brain tumor was a shock to her family, the location and type of tumor meant surgery at CHOP was the only treatment she needed.
Congenital Nephrotic Syndrome and Kidney Transplant: Molly’s Story
After Molly qualified for a kidney transplant, a new organ from a living donor was identified thanks to CHOP’s involvement with the National Kidney Registry.
Autism Spectrum Disorder: Snai’s Story
After being diagnosed with autism, Snai began receiving various therapies. But his family’s emphasis on emotional intelligence has truly helped him thrive.
Idiopathic scoliosis and posterior spine fusion: Lily’s story
Alabama girl comes to CHOP for spine surgery that straightens her spine and allows her to continue competitive dance.
VACTERL Association: Olivia’s Story
Diagnosed with VACTERL Association, Olivia found improved care and treatment at CHOP’s Suzi and Scott Lustgarten Center for GI Motility.
PICU Experience at the Middleman Family Pavilion: Louie’s Story
After a recent surgery to repair a fractured leg, Louie was transferred to the Middleman Family Pavilion in King of Prussia to recover, which is much closer to the family’s home.
A Dream Fulfilled: From Surgery as a Newborn to a Nurse in the ICU
Abby underwent surgery to remove a lung lesion at CHOP in her first few days of life and is now, 26 years later, a nurse in the Hospital’s ICU.
Double Lung Transplant: Marcellius’s Story
As a toddler with lung disease, Marcellius was given five years to live. A double lung transplant at CHOP saved him, and he’s now a young adult.