Stories to inspire
Eosinophilic esophagitis: Princess’ story
Princess has struggled for years with a rare inflammatory condition of the esophagus. Thanks to CHOP, a new medication and family support, she’s now thriving.
Omphalocele Discovered During Pregnancy: Grace’s Story
At CHOP, when pediatric surgeons perform postnatal repair of omphalocele, a child’s health and quality of life are both top of mind.
New Onset Nephrotic Syndrome: Nolan’s Story
3 year old Nolan’s leg pain and swelling of his eyes and stomach led to a diagnosis of nephrotic syndrome, now managed by immunosuppression.
Lung Transplant: Leah’s Story
Born with a rare lung disorder, Leah is one of the youngest patients to go from a heart-lung bypass machine to successful lung transplant.
The Beauty of Different: Sasha’s Story
From gracing a magazine cover to writing for one, this former Fetal Heart Program patient aims to shake up the beauty industry and its view of scars.
Life with Celiac Disease: Anna’s Story
Teen with celiac disease pens personal guide to gluten-free living for other newly diagnosed youth.
Sophia’s Story: Fetal Surgery to Remove a Sacrococcygeal Teratoma
Before she was born, Sophia underwent successful surgery at Children's Hospital of Philadelphia to remove a tumor called a sacrococcygeal teratoma from her tailbone. See how she's doing now.
From Sudden Cardiac Arrest to AED Advocate: Maddie’s Story
When 17-year-old Maddie collapsed on the school athletic field, a quick-thinking staff member saved her life with an AED. Now she’s determined to save others.
Maxwell’s Story: Postnatal Repair and Care for Congenital Diaphragmatic Hernia
Chris and Jolin traveled from their home in Pensacola, Florida to Children’s Hospital of Philadelphia to give their son, Max, access to world-class CDH care.
Thomas’s story: Prenatal diagnosis and postnatal surgical repair of encephalocele
One family shares their experience for parents who learn their child has a severe diagnosis before birth.