GIKids
GIKids provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents.
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GIKids provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents.
The APFED is a non-profit organization for adults, children and families living with eosinophilic gastrointestinal disorders.
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Global Genes is committed to providing information, resources and connections to all communities affected by rare disease.
Includes information on the anti-bullying initiative, “Don’t Laugh at Me,” as well as professional development workshops and school assembly programs.
Support research and advocacy, networking among families, provide factual information and resources.
Lipedema Foundation focuses on research for cause & effective treatment of lipedema.
A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
Education, financial assistance, research and awareness.