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Health resource

GIKids

GIKids provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents.

Health resource

Birthmarks.com

Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.

Health resource

CarePages

A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.

Health resource

Global Genes

Global Genes is committed to providing information, resources and connections to all communities affected by rare disease.

Health resource

Operation Respect

Includes information on the anti-bullying initiative, “Don’t Laugh at Me,” as well as professional development workshops and school assembly programs.

Health resource

PHACE Syndrome Community

Support research and advocacy, networking among families, provide factual information and resources.

Health resource

Lipedema Foundation

Lipedema Foundation focuses on research for cause & effective treatment of lipedema.

Health resource

Proteus Syndrome Foundation

A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

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