Skip to main content

Caring for your child

Search patient & family resources

Filter By

Type

Aggregated field

Audience

Showing 1 - 10 of 28 results

Health resource

Birthmarks.com

Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.

Health resource

CarePages

A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.

Health resource

CLOVES Syndrome Community

Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.

Health resource

Infantile Hemangioma

A disease awareness web site created by Pierre Fabre Pharmaceuticals Inc.

Health resource

Lymphangiomatosis & Gorham Disease Alliance (LGDA)

Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**

Health resource

Lymphatic Research Foundation

A 501(c) (3) not-for profit organization whose mission is to advance research, find the cause of and cure for lymphatic disease. Includes factual information, resources, newsletter, and a medical journal.

Jump back to top