Living with XXY
A blog by Ryan Bregante about what it means to live with Klinefelter syndrome, also known as 47 XXY, including helpful resources, personal stories, local meetings and much more.
Caring for your child
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Showing 1 - 10 of 32 results
Congenital Adrenal Hyperplasia: A Parents’ Guide
Congenital Adrenal Hyperplasia: A Parents’ Guide is a comprehensive guide for parents of children with CAH, written in plain English by an endocrinologist and a mother of a child with CAH.
National Adrenal Diseases Foundation
The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
Birthmarks.com
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
CarePages
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Global Genes
Global Genes is committed to providing information, resources and connections to all communities affected by rare disease.
Operation Respect
Includes information on the anti-bullying initiative, “Don’t Laugh at Me,” as well as professional development workshops and school assembly programs.
PHACE Syndrome Community
Support research and advocacy, networking among families, provide factual information and resources.
Lipedema Foundation
Lipedema Foundation focuses on research for cause & effective treatment of lipedema.
Proteus Syndrome Foundation
A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.