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The American Syringomyelia & Chiari Alliance Project Inc. (ASAP) is a nonprofit organization dedicated to improving the lives of individuals affected by Chiari malformation, syringomyelia, and related disorders. They provide support, education and information for patients and their families, fund research, and work to increase awareness and understanding of these conditions.
The SSI program makes payments to those age 65 or older, blind, or disabled persons (including children) who have limited income and resources. Social Security has a strict definition of disability for children (condition must seriously limit his or her activities; and must have lasted, or be expected to last, at least 1 year or result in death).
Provides a brief overview of the importance of risk and protective factors as they relate to suicide and offers guidance about how communities can best use them to decrease suicide risk.
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
A magazine for parents of children with special needs.
HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.
Vascular Malformation advocacy and support. Includes factual information and resources.
Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**