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Health resource

Developmental Therapy Group

The “Developmental Therapy Group” is a group program offered at Virtua Specialty Care Center. Four children participate in an 8-week Physical and Occupational Therapy developmental group aimed at improving skills such as independence with dressing, clothing fasteners, utensil use and handwriting as well as improving general strength, balance and coordination. If your child is age 4 - 8 years old and you'd be interested in participating, please contact devgroupVirtua@chop.edu.

Health resource

Birthmarks.com

Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.

Health resource

CarePages

A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.

Health resource

CLOVES Syndrome Community

Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.

Health resource

Infantile Hemangioma

A disease awareness web site created by Pierre Fabre Pharmaceuticals Inc.

Health resource

Lymphangiomatosis & Gorham Disease Alliance (LGDA)

Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**

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