Hip Preservation Options for Young Adults
The Young Adult Hip Preservation Program at CHOP is a unique program specifically for young adults with complex hip disorders.
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Cornelia de Lange Syndrome Foundation Inc.
The Cornelia de Lange Syndrome Foundation is a nonprofit organization providing families and caregivers with a wealth of support, services, education and information about Cornelia de Lange syndrome (CdLS).
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.