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In this episode of Pediatric & Congenital Heart Talks, Jack Rychik, MD, provides a glimpse into the near future of fetal cardiovascular care, including insights on several new developments.
Play and recreation can be therapeutic by giving children the opportunity to explore, express and process their healthcare experiences in a safe, non-threatening environment.
CHOP offers resources to help parents support their children and provide developmentally appropriate information regarding their medical care.
This resource from Children’s Hospital of Philadelphia provides information on 504 plans, which ensure reasonable accommodations for children who qualify.
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.
Please complete this form and send it to the Cardiac Intake Center.
The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families.
The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more.
The PA IEB provides enrollment support for Pennsylvania’s Home and Community Based (HCBS) waiver programs.