American Cancer Society
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.
Caring for your child
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Neurofibromatosis Family Association (NFFA)
NFFA is a parent volunteer group that exists to support families and individuals at CHOP who are affected by neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.
Thriving in School After Treatment
In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.
NF2 Crew
The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.
Emergency Room or Urgent Care for My Child?
Wondering whether you should take your child to an emergency room or urgent care? Learn about your options when you need help after the doctor’s office is closed.
Pediatric Airway Management
A video presentation on Pediatric Airway Management
Pediatric Drowning
A video presentation by Mercedes Blackstone, MD, on Pediatric Drowning
Genetics Home Reference — Beckwith-Wiedemann syndrome
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
Medline Plus — Beckwith-Wiedemann Syndrome
Medline Plus is the National Institutes of Health's website for patients and their families and friends.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.