Primary Ciliary Dyskinesia Foundation (PCD)
PCDF is a not-for-profit patient advocacy foundation for individuals with inherited ciliary disorders and their caregivers.
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National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Cornelia de Lange Syndrome Foundation Inc.
The Cornelia de Lange Syndrome Foundation is a nonprofit organization providing families and caregivers with a wealth of support, services, education and information about Cornelia de Lange syndrome (CdLS).