National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
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The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The Cornelia de Lange Syndrome Foundation is a nonprofit organization providing families and caregivers with a wealth of support, services, education and information about Cornelia de Lange syndrome (CdLS).
Congenital Adrenal Hyperplasia: A Parents’ Guide is a comprehensive guide for parents of children with CAH, written in plain English by an endocrinologist and a mother of a child with CAH.
CARES is a nonprofit organization committed to improving the lives of families and individuals affected by CAH.