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The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
In this episode of Pediatric & Congenital Heart Talks, Meryl Cohen, MD, reviews variations in AVC defects and how valvar imbalance impacts strategies of care.
Watch this video of lymphatic flow and drainage from the Jill and Mark Fishman Center for Lymphatic Disorders at CHOP.
Here are some common questions parents have when they think about holding their baby in intensive care. Your care team is here to support you ever step of the way.
View this presentation from Christopher Smith, MD, PhD, with the Lymphatic Education & Research Network.
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
In this episode of Pediatric & Congenital Heart Talks, Yoav Dori, MD, PhD, covers innovative diagnostics and therapeutic strategies for lymphatic disorders.
Dr. Yoav Dori discusses advanced technologies he and his team developed to diagnose and treat life-threatening diseases of the lymphatic system, on the podcast series Breaking Through with Madeline Bell.
Spreading the word about CHD is vital to educating the public as a step towards improving care and fueling scientific research.