RYR1 Foundation
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
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Showing 1 - 10 of 33 results
Cure Spinal Muscular Atrophy
Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.
Childhood Brain & Spinal Cord Tumors: A Guide for Families
This guide includes descriptions of the newest brain and spinal cord tumor treatments, as well as practical advice about how to cope with the diagnosis.
Adolescent and Young Adult FAQs
If you are an adolescent or young adult (AYA) with cancer, you probably have many questions. We understand that not everyone wants to ask their questions out loud, so we’ve compiled a list of those that are often asked.
Cancer Hope Network
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
Pacific Pediatric Neuro-Oncology Consortium (PNOC)
PNOC is a network of eight children’s hospitals that conduct clinical trials of new therapies for children with brain tumors.
Thriving in School After Treatment
In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.
Fertility Options for Young Female Cancer Patients
The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.
Childhood Cancer: A Parent's Guide to Solid Tumor Cancers
This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.
NF2 Crew
The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.