International Society for Adult Congenital Heart Disease (ISACHD)
The ISACHD provides information for patients with congenital heart disease including a CHD glossary, list of advocacy and support groups, print resources, and clinic directory.
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Showing 1 - 10 of 17 results
American College of Cardiology (ACC)
ACC is a nonprofit medical society dedicated to transforming cardiovascular care and improving heart health through education, research, quality care and health policy.
American Heart Association
AHA is the nation’s oldest, largest voluntary organization devoted to fighting cardiovascular diseases and stroke.
National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
Organic Acidemia Association
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
Metabolic Support UK
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
NJ Statewide Parent Advocacy Network
The website offers families and professionals information, resources, support and advocacy assistance.
Cure Mito Foundation
The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.
How Much Phe?
"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."