National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
Caring for your child
Search patient & family resources
Filter By
Type
Aggregated field
Topic
Audience
Showing 1 - 10 of 16 results
Organic Acidemia Association
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
Metabolic Support UK
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
Non-invasive Ventilation for Infants and Children
Find information on how to prepare your child to use the CPAP machine through a gradual desensitization process.
Cleaning Your Positive Airway Pressure (PAP) Equipment
Find information on how to clean your positive airway pressure (PAP) equipment, which is used to treat sleep apnea.
NJ Statewide Parent Advocacy Network
The website offers families and professionals information, resources, support and advocacy assistance.
Cure Mito Foundation
The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.
How Much Phe?
"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."
The Mid-Atlantic Connection for PKU and Allied Disorders
MACPAD is a network of individuals and families touched by phenylketonuria and allied disorders. Their website provides educational resources, newborn screening information, support groups, upcoming events, and more.