Transplant Process at CHOP
Information on the transplant process at CHOP.
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Be the Match Peer Connect Program
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
BMT Infonet Caring Connections Program
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
Organic Acidemia Association
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
Metabolic Support UK
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
Gene Therapy Resources for Blood Disorders
Want to learn more about gene therapy for blood disorders? These are trusted resources that can give you helpful information and explanations.