FAQs about 504 Plans
This resource from Children’s Hospital of Philadelphia provides information on 504 plans, which ensure reasonable accommodations for children who qualify.
Caring for your child
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Transplant Process at CHOP
Information on the transplant process at CHOP.
Be the Match Peer Connect Program
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
BMT Infonet Caring Connections Program
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
NIDDK is a branch of the National Institutes of Health that offers health and research information about a variety of digestive diseases that can affect the liver.
Diabetes Apps
Find diabetes apps for you phone to help you with carb counting, keeping track of your blood sugar, calories intake and more.
SparkRecipes
Find and rate low calorie, healthy recipes at SparkRecipes. Use the free recipe calculator to find the calories, carbs, fat and protein in your recipes.
Glu - Type 1 Diabetes Online Community
Glu is part of the T1D Exchange, a nonprofit organization with a mission to improve the lives of people touched by T1D.
National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).