National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
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Showing 1 - 10 of 14 results
Organic Acidemia Association
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
Metabolic Support UK
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
NJ Statewide Parent Advocacy Network
The website offers families and professionals information, resources, support and advocacy assistance.
American College of Allergy, Asthma & Immunology
The American College of Allergy, Asthma & Immunology provides information and resources about allergies and asthma for patients and families.
Cure Mito Foundation
The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.
How Much Phe?
"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."
The Mid-Atlantic Connection for PKU and Allied Disorders
MACPAD is a network of individuals and families touched by phenylketonuria and allied disorders. Their website provides educational resources, newborn screening information, support groups, upcoming events, and more.
National PKU Alliance
The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research. Find helpful resources, educational information, news and events, and how you can take get involved.