Face to Face Portrait Project
The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
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The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
Learn more about craniosynostosis and surgical treatment for the condition.
Learn more about jaw surgery and how it's managed at CHOP.