Skip to main content

Caring for your child

Search patient & family resources

Filter By

Type

Aggregated field

Topic

Audience

Showing 1 - 10 of 13 results

Health resource

Organic Acidemia Association

The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.

Health resource

Metabolic Support UK

The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.

Health resource

Cure Mito Foundation

The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

Health resource

How Much Phe?

"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."

Health resource

The Mid-Atlantic Connection for PKU and Allied Disorders

MACPAD is a network of individuals and families touched by phenylketonuria and allied disorders. Their website provides educational resources, newborn screening information, support groups, upcoming events, and more.

Health resource

National PKU Alliance

The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research. Find helpful resources, educational information, news and events, and how you can take get involved.

Jump back to top