National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
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The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
The website offers families and professionals information, resources, support and advocacy assistance.
The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.
"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."
MACPAD is a network of individuals and families touched by phenylketonuria and allied disorders. Their website provides educational resources, newborn screening information, support groups, upcoming events, and more.
The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research. Find helpful resources, educational information, news and events, and how you can take get involved.