RYR1 Foundation
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
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Cure Spinal Muscular Atrophy
Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.
The Center for Parent Information and Resources (CPIR)
Provides resources for young people with a disability considering employment, and helps families find a Parent Training and Information Center (PTI) or a Community Parent Resource Center (CPRC) in their area that offer information about early intervention, school services, therapy, local policies, transportation, and much more.
Resource Guide for Adolescent and Young Adult Survivors of Cancer
The Resource Guide for Adolescent and Young Adult Survivors of Cancer offers important resources that may be helpful to adolescent and young adult (AYA) survivors of cancer.
United Cerebral Palsy
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
Any.do
Offers To Do list, calendars, reminders and a daily planner all in one location. Works with Siri, Alexa, Google assistant, Apple smartwatches and Google smartwatches.
Cancer Center Teacher Guide to School Reentry
The Oncology Psychosocial Services Team at the Children’s Hospital of Philadelphia has prepared this handbook to provide you with information for transitioning your child with cancer back to school.
Parent Project Muscular Dystrophy
PPMD provides information about Duchenne muscular dystrophy, the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births.
Spinal Muscular Atrophy Foundation
The mission of the SMA Foundation is to accelerate the development of a treatment for spinal muscular atrophy, the number one genetic killer of infants and toddlers.
Myasthenia Gravis Foundation of America
Find information about myasthenia gravis (MG), including living with MG, community support, research and how you can help.