Transplant Recipients International Organization (TRIO)
TRIO is committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Caring for your child
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National Cancer Institute — Wilms Tumor and Other Childhood Kidney Tumors
The National Cancer Institute is the nation's trusted source of information about Wilms tumor and other types of childhood cancers.
The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
GeneReviews™
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
Pediatric Transplant Center Financial Counseling
The Transplant Center has a dedicated financial counselor who will work with you and your insurance company to obtain detailed insurance benefits for all aspects of the transplant process.
Scientific Registry of Transplant Recipients
The Scientific Registry of Transplant Recipients (SRTR) is an ever-expanding national database of transplant statistics. The registry exists to support ongoing evaluation of the scientific and clinical status of solid organ transplantation, including kidney, heart, liver, lung, intestine, and pancreas.
International Pediatric Transplant Association
The International Pediatric Transplant Association (IPTA) is a professional organization of individuals in the field of pediatric transplantation. The purpose of the Association is to advance the science and practice of pediatric transplantation worldwide in order to improve the health of all children who require such treatment.
Beckwith-Wiedemann Syndrome Support Group – U.K.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.
Genetics Home Reference — Beckwith-Wiedemann syndrome
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
National Wilms Tumor Study
National Wilms Tumor Study is a non-profit federally funded research study.