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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
This video is for parents and caregivers who want to learn more about biofeedback therapy, a technique used to help children learn how their muscles can work together when having a bowel movement.
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
Learn how to administer high-volume colonic enemas from an expert at The Children's Hospital of Philadelphia.
Learn how to administer a saline, mineral oil or Bisacodyl enema to a child. This video offers parents and caregivers step-by-step instructions.
In this video for parents and caregivers, you'll learn about prep instructions for an anorectal manometry exam, what to expect during the procedure and what your child will need to do during the test.
Esophageal manometry is a procedure that measures pressure, sensation and coordination of the esophageal muscles. In this video for parents and caregivers, you'll learn about what you and your child can expect during this procedure and watch as it's performed on a medical mannequin
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
Childhood Leukemia is a book that offers both medical and support information about leukemia in children, along with stories from patients and families.
Beautifully-illustrated oncology book written for children with leukemia and their parents. Offers a basic, medically accurate explanation of all phases of leukemia, including causes, effects, and treatments.