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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
This video is for parents and caregivers who want to learn more about biofeedback therapy, a technique used to help children learn how their muscles can work together when having a bowel movement.
The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
Learn how to administer high-volume colonic enemas from an expert at The Children's Hospital of Philadelphia.
Learn how to administer a saline, mineral oil or Bisacodyl enema to a child. This video offers parents and caregivers step-by-step instructions.
In this video for parents and caregivers, you'll learn about prep instructions for an anorectal manometry exam, what to expect during the procedure and what your child will need to do during the test.
Esophageal manometry is a procedure that measures pressure, sensation and coordination of the esophageal muscles. In this video for parents and caregivers, you'll learn about what you and your child can expect during this procedure and watch as it's performed on a medical mannequin
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
Is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy.
March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.