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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
The Newborn/Infant Intensive Care Unit (N/IICU) at CHOP's Middleman Family Pavilion in King of Prussia, Pa., is a Level III unit that provides specialized care.
The Harriet and Ronald Lassin Newborn/Infant Intensive Care Unit (N/IICU) located on our Philadelphia Campus is one of the biggest and best in the world.
Follow these rules to promote use of a healthy speaking voice, and improve or prevent a voice disorder.
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
Find comprehensive breastfeeding information, online forums and support groups, FAQs, conferences, an international online store, and more.
Read common questions parents have once they're able to hold their baby in intensive care.
AGSAA provides information about Aicardi-Goutières syndrome, resources for families and physicians, support groups, research information and more.
With its mission to improve health outcomes for patients with X-linked adrenoleukodystrophy, ALD Connect provides education and support information for families, research information, ways to get involved, and more.
Canavan Foundation is a not-for-profit organization dedicated to educating at-risk populations about Canavan disease and other Jewish genetic diseases and supporting research looking into a cure.