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CureHHT

Cure HHT has consistently been at the center of the national and global effort to advocate for patients and families, raise awareness of HHT, guide and fund critical research, create lasting collaborations and encourage scientists to work on new treatments.

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HHT Guidelines

From the Annals of Internal Medicine, the Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia.

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HHT Nosebleed Treatment Options

This resource provides a view of the many treatment options for nosebleeds cause by Pediatric Hereditary Hemorrhagic Telangiectasia (HHT).

Health resource

Mental Health and Congenital Heart Disease: A Review

Lyla El-Messidi Hampton, PhD, ABPP-CN, pediatric neuropsychologist and co-director of the Cardiac Kids Developmental Follow-up Program at CHOP, and Nicholas Seivert, PhD, psychologist in the Cardiac Center at CHOP, review the many reasons for increased mental health risk among children with heart defects, especially single ventricle patients, and provide information about: importance of early identification and intervention; ADHD meds for CHD patients; the higher rate of autism spectrum disorders in this population; the parental distress loop; screening in primary care, and red flags; places to refer at CHOP; and more.

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