Congenital Adrenal Hyperplasia: A Parents’ Guide
Congenital Adrenal Hyperplasia: A Parents’ Guide is a comprehensive guide for parents of children with CAH, written in plain English by an endocrinologist and a mother of a child with CAH.
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National Adrenal Diseases Foundation
The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
The Plastic Bronchitis Foundation
The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
Lymphangiomatosis and Gorham's Disease Alliance
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
Normal Lymphatic Anatomy and Flow Video
Watch this video of lymphatic flow and drainage from the Jill and Mark Fishman Center for Lymphatic Disorders at CHOP.
New Diagnostic Procedures and Interventions for Patients with Systemic Lymphatic Disease
View this presentation from Christopher Smith, MD, PhD, with the Lymphatic Education & Research Network.
Management of Infants with Lymphatic Disorders Clinical Pathway — Inpatient
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
Living with XXY
A blog by Ryan Bregante about what it means to live with Klinefelter syndrome, also known as 47 XXY, including helpful resources, personal stories, local meetings and much more.
Pediatric Sepsis Program Information Brochure
Information about sepsis and our Pediatric Sepsis Program is available for download in English, Spanish and Arabic.
The Lymphatic System and Its Importance in Congenital Heart Disease
In this episode of Pediatric & Congenital Heart Talks, Yoav Dori, MD, PhD, covers innovative diagnostics and therapeutic strategies for lymphatic disorders.