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The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
Watch this video of lymphatic flow and drainage from the Jill and Mark Fishman Center for Lymphatic Disorders at CHOP.
View this presentation from Christopher Smith, MD, PhD, with the Lymphatic Education & Research Network.
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
In this episode of Pediatric & Congenital Heart Talks, Yoav Dori, MD, PhD, covers innovative diagnostics and therapeutic strategies for lymphatic disorders.
Dr. Yoav Dori discusses advanced technologies he and his team developed to diagnose and treat life-threatening diseases of the lymphatic system, on the podcast series Breaking Through with Madeline Bell.
If your teen has an eating disorder—such as anorexia, bulimia, or binge eating—you may feel helpless, worried, or uncertain about how you can best support them. That’s why you need real, proven-effective strategies you can use right away. Whether used in conjunction with treatment or on its own, this book offers an evidence-based approach you can use now to help your teen make healthy choices and stay well in body and mind.
This poignant and informative narrative relates how one mother rescued her daughter from the "experts" and treated the girl's life-threatening anorexia using a controversial approach. Known as the Maudsley Approach, this home-based, family-centered therapy, developed in Great Britain in the 1980s, has been receiving a lot of press here over the past few years.
The most effective treatment for eating disorders is family-based, where parents play an essential role. Yet most struggle to know what to do and how to do it. With a wealth of practical examples and tips that have helped many tens of thousands of relieved parents, Eva Musby guides you through each stage of your son or daughter's recovery. She provides solace and confidence, while addressing the real-life questions that parents struggle with.