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The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
The National MS Society provides information, resources, programs and services for individuals living with MS and other immune-mediated, demyelinating diseases of the central nervous system.
Watch this video of lymphatic flow and drainage from the Jill and Mark Fishman Center for Lymphatic Disorders at CHOP.
View this presentation from Christopher Smith, MD, PhD, with the Lymphatic Education & Research Network.
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
Established by families and patients affected by autoimmune encephalitis, the alliance provides information about autoimmune encephalitis, a list of current research studies, and latest news.
The Transverse Myelitis Association advocates for people with a variety of immune-mediated disorders of the central nervous system, including acute disseminated encephalomyelitis, neuromyelitis optica spectrum disorder, optic neuritis, transverse myelitis (including AFM), and their caregivers.
In this episode of Pediatric & Congenital Heart Talks, Yoav Dori, MD, PhD, covers innovative diagnostics and therapeutic strategies for lymphatic disorders.
Dr. Yoav Dori discusses advanced technologies he and his team developed to diagnose and treat life-threatening diseases of the lymphatic system, on the podcast series Breaking Through with Madeline Bell.