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Chiari Malformation Support Groups: American Syringomyelia & Chiari Alliance Project, Inc.

The American Syringomyelia & Chiari Alliance Project Inc. (ASAP) is a nonprofit organization dedicated to improving the lives of individuals affected by Chiari malformation, syringomyelia, and related disorders. They provide support, education and information for patients and their families, fund research, and work to increase awareness and understanding of these conditions.

Health resource

The Pediatric Pulmonary Hypertension Network

The Pediatric Pulmonary Hypertension Network website provides information about PPH to PPHnet members, other medical professionals and the public, and promotes research, education and training. 

Health resource

Crisis Resources

View a variety of help hotlines, as well as websites available for families in need.