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Health resource

Leukodystrophy Center Welcome Guide

We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.

Health resource

FAQs about 504 Plans

This resource from Children’s Hospital of Philadelphia provides information on 504 plans, which ensure reasonable accommodations for children who qualify.

Health resource

Rules for a Healthy Voice

Follow these rules to promote use of a healthy speaking voice, and improve or prevent a voice disorder.

Health resource

Leukodystrophy Symposium Webinar Videos

These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.

Health resource

Diabetes Apps

Find diabetes apps for you phone to help you with carb counting, keeping track of your blood sugar, calories intake and more.

Health resource

SparkRecipes

Find and rate low calorie, healthy recipes at SparkRecipes. Use the free recipe calculator to find the calories, carbs, fat and protein in your recipes.

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