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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
This step-by-step guide — designed specifically for children with autism — explains what kids can expect during the entire surgical experience at CHOP.
This kid-friendly slideshow can help prepare your child for getting an X-ray. The information is also helpful for children with special needs.
To help prepare your child for her video EEG, watch this kid-friendly slideshow, which offers a step-by-step description of what to expect during the test.
This website offers suggestions to parents about ways to help the other children in the family cope with the experience of having a brother or sister with autism.
Whether your child has just been diagnosed or you’ve hit an obstacle and are looking for new ideas and resources, the CAR Autism Roadmap™ offers customized resources and up-to-date information about autism spectrum disorder (ASD).
Follow these rules to promote use of a healthy speaking voice, and improve or prevent a voice disorder.
Penn State Educational Equity website provides a comprehensive checklist that students with disabilities and their parents can use to help prepare them for a post-secondary education.
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
ASAN is a nonprofit organization run by and for autistic people. They provide information and resources about autism, disability rights, and systems change.