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Leukodystrophy Center Welcome Guide

We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.

Health resource

Childhood Liver Disease Research Network

ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.

Health resource

Pediatric Transplant Center Financial Counseling

The Transplant Center has a dedicated financial counselor who will work with you and your insurance company to obtain detailed insurance benefits for all aspects of the transplant process.

Health resource

Rules for a Healthy Voice

Follow these rules to promote use of a healthy speaking voice, and improve or prevent a voice disorder.

Health resource

Leukodystrophy Symposium Webinar Videos

These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.

Health resource

Pediatric Acute Liver Failure

PALF aims at identifying, characterizing, and developing management strategies for infants, children, and adolescents who present with acute liver failure.

Health resource

Gift of Life

Gift of Life is the organ and tissue procurement organization (OPO) serving eastern Pennsylvania, southern New Jersey and Delaware.

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