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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
The International Rett Syndrome Foundation (IRSF) is laser-focused on creating a world without Rett syndrome. For nearly 40 years, we have fueled life-changing advancements in research toward a cure.
The Rett Syndrome Primary Care Guidelines provide suggested visit schedules by clinical area of assessment, specific concerns to look for and timelines for follow up appointments. Download today to ensure the best care for your child.
PALF aims at identifying, characterizing, and developing management strategies for infants, children, and adolescents who present with acute liver failure.
This website provides information and communication about biliary atresia to the general public and a secure area for healthcare professionals.
Biliary Atresia Network is an online support group for families who are dealing with pediatric liver disease, biliary atresia pre- or post-transplant.
UNOS is a private, nonprofit organization managing the nation's organ transplant system under contract with the federal government.
NIDDK is a branch of the National Institutes of Health that offers health and research information about a variety of digestive diseases that can affect the liver.