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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
It provides multidisciplinary scientific education for healthcare professionals, and promotes excellence in research and services for people with cerebral palsy.
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
The CHOP Community Resources database offers families and professionals the opportunity to see what resources for children with disabilities and illnesses are available in the region and, in some instances, across the country.
Take a tour of the Cancer Immunotherapy Program with Paulina, who traveled to Philadelphia from Mexico for T-cell therapy for acute lymphoblastic leukemia.
Camp All Hands on Deck is a summer camp for children with hemiparesis, or weakness on one side of the body.
AGSAA provides information about Aicardi-Goutières syndrome, resources for families and physicians, support groups, research information and more.
With its mission to improve health outcomes for patients with X-linked adrenoleukodystrophy, ALD Connect provides education and support information for families, research information, ways to get involved, and more.
Canavan Foundation is a not-for-profit organization dedicated to educating at-risk populations about Canavan disease and other Jewish genetic diseases and supporting research looking into a cure.