National Cancer Institute — Wilms Tumor and Other Childhood Kidney Tumors
The National Cancer Institute is the nation's trusted source of information about Wilms tumor and other types of childhood cancers.
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The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
GeneReviews™
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
Ketogenic Diet Teaching Kitchen and Cooking Classes
Children’s Hospital of Philadelphia’s Ketogenic Diet Teaching Kitchen (Keto Kitchen) is a teaching kitchen where parents and caregivers can take cooking classes and learn to prepare the foods their child will need when following a dietary treatment for epilepsy and neurological disorders.
The Charlie Foundation for Ketogenic Therapies
The Charlie Foundation for Ketogenic Therapies was founded in 1994 to provide information about diet therapies for people with epilepsy, other neurological disorders and select cancers.
Beckwith-Wiedemann Syndrome Support Group – U.K.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.
Genetics Home Reference — Beckwith-Wiedemann syndrome
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
National Wilms Tumor Study
National Wilms Tumor Study is a non-profit federally funded research study.
Medline Plus — Beckwith-Wiedemann Syndrome
Medline Plus is the National Institutes of Health's website for patients and their families and friends.
Gorlin Syndrome Group
The Gorlin Syndrome Group is a network offering guidance and information to patients, their families and caregivers whose lives are affected by Gorlin Syndrome.