Sibshops at CHOP
Sibshops is a fun and rewarding program for brothers and sisters of children with special health or developmental needs to gain peer support and education through facilitator led discussions, activities and games.
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Showing 1 - 10 of 12 results
Prevent Child Abuse America (PCAA)
Prevent Child Abuse America is the nation’s oldest and largest organization committed to preventing child abuse and neglect before it happens. Programs and resources informed by science that enable kids, families, and entire communities to thrive—today, tomorrow, and for generations to come are the hallmark of this organization.
Applying for Pennsylvania Medical Assistance (PAMA)
This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.
American Academy of Pediatrics Safe and Sound
Responding to the experiences of children adopted or in foster care has downloadable guides for parents, teachers, babysitters and child welfare professionals to help understand how trauma can impact behaviors and development as well as strategies to respond.
HealthyChildren.org — Adoption and Foster Care
The American Academy of Pediatrics’ parenting website offers resources and information about adoption and foster care, including information about becoming a foster parent, discipline, sexual abuse and safety.
Philadelphia Alliance for Child Trauma
PACTS is a network of child serving systems and organizations, under the leadership of the Philadelphia Department of Behavioral Health and Intellectual disAbility (DBHIDS), that provides the most effective practices for traumatized youth and their families.
National Organization for Rare Disorders (NORD)
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
Zero to Three — National Center for Infants, Toddlers, and Families
Zero to Three is a national nonprofit organization that provides parents, professionals, and policymakers with the knowledge and the know-how to nurture early development.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
Orphan Disease Program
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.