Yes You Can: Building Independence with Spina Bifida
In this video series, Ciarlo shows how individuals with spina bifida can build independence. Topics include: navigating stairs, sitting, self-care, moving with crutches, and exercise.
Caring for your child
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Showing 1 - 10 of 32 results
VEO-IBD Parent Group
We welcome families of children with very early onset inflammatory bowel disease (VEO-IBD) to join us virtually to interact and discuss the challenges of living with VEO-IBD.
GIKids
GIKids provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents.
Crisis Resources
View a variety of help hotlines, as well as websites available for families in need.
How to Give an Enema to a Child
Learn how to administer a saline, mineral oil or Bisacodyl enema to a child. This video offers parents and caregivers step-by-step instructions.
How Anorectal Manometry Is Performed
In this video for parents and caregivers, you'll learn about prep instructions for an anorectal manometry exam, what to expect during the procedure and what your child will need to do during the test.
How Esophageal Manometry Is Performed
Esophageal manometry is a procedure that measures pressure, sensation and coordination of the esophageal muscles. In this video for parents and caregivers, you'll learn about what you and your child can expect during this procedure and watch as it's performed on a medical mannequin
Disability Rights PA Transition Resources
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.
Spina Bifida Program Advisory Board
The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families.
Pennsylvania Health Law Project: Medical Assistance
The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more.