Transplant Process at CHOP
Information on the transplant process at CHOP.
Caring for your child
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Be the Match Peer Connect Program
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
BMT Infonet Caring Connections Program
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
The Lupus Foundation of America
Get answers about lupus, its diagnosis and treatment options. Find help and resources, read news and stories, and learn about the Lupus Foundation of America national patient advocacy and research program.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Transitioning Your Arthritis and Rheumatic Disease Care to an Adult Provider
Adolescents with chronic illnesses, including arthritis, need guidance and a plan for the future in order to safely transition to an adult provider.
Gene Therapy Resources for Blood Disorders
Want to learn more about gene therapy for blood disorders? These are trusted resources that can give you helpful information and explanations.
Gene Therapy for Sickle Cell Disease and Thalassemia
Scientists at CHOP are pioneering gene therapy so people with these red blood cell disorders can go beyond just managing their chronic disease and live healthy lives.
Lupus and Pregnancy
Lupus can affect pregnancy at any stage. It is not clear whether the severity of the disease or the type of medication causes problems.